severve aurta stenosis: anyone else had... - British Heart Fou...

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severve aurta stenosis

Patty42 profile image
6 Replies

anyone else had this I’m so worried

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Patty42 profile image
Patty42
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6 Replies
Yumz199725 profile image
Yumz199725

I don't have severe but I do have mild to moderate. Are you having surgery?? Have you spoken to your cardiologist?

Rhinos67 profile image
Rhinos67

Hi and yes.I had surgery last April to replace my Aortic valve and the Aortic root. It's quite common but feels like the rug has been pulled from under you when you get the diagnosis.

Please ask if you need to know anything or maybe join our Facebook group. UK Aortic and Heart Defects Pre and Post surgery. Lots of people in the same situation and lots of advice and reassurance

Joanne

😊

Ageingfast profile image
Ageingfast

welcome to the site. Lots of good people are on this forum..

YES dozens of us had severe aortic stenosis.

Stenosis means blocked.

You will almost certainly need a new valve, quite soon.

It’s a major operation but success rates are 99% or better. It takes a few months of recovery.

By far the worst bit is waiting for the op. I was so nervous. But as I entered the hospital the nerves melted away. Before the op I had three tests. Mine were in the hospital but it’s common to have these tests as an out patient.

There isn’t any need to be worried. Surgeons do this op every day. The staff are wonderful. It is so much better than other hospital procedures.

After 14 weeks I had my life back and felt wonderful.

Sooty

Cat04 profile image
Cat04

Yes - just had my aortic valve replaced 5 weeks ago by OHS due to severe aortic stenosis. Join the f/b group mentioned above by rhino. Many of us on there with the same condition and it's such a friendly, helpful, reassuring group of people. You can ask anything and you won't be alone x

andy110519 profile image
andy110519

Hi, As already said the waiting is probably the worst bit. It's very common surgery and having had it done nearly 4 years ago my fitness levels are better than they have been in a long time, I was 50 when I had it done.Easy to say afterwards but try not to worry about it too much, it's not as bad as whatever you are thinking.

Take care.

Andy

Thonglor profile image
Thonglor

Just like the other replies, I encourage you to look on the bright side. You have been diagnosed and it is a treatable condition. I had the operation, along with a triple by-pass, 15 months ago. The hospital stay (2 weeks in my case) was very uncomfortable rather than painful, and I had a few months after that of slowly increasing strength. Now the only effect seems to be that the symptoms, which I had tended, unwisely, to try to "work through" have gone away. You can look forward to those days, if you have symptoms. And don't worry about your age--I am mid 80's. You will have many good years ahead.

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reassurance from others who have had similar experience as quite worried.