Repatha : anyone on Repatha injections ? - British Heart Fou...

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Legend2 profile image
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anyone on Repatha injections ?

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Legend2
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Astronomyrules profile image
Astronomyrules

Hi Legend2 , I too have FH and have been on Repatha for over two years. Initially I had a localised skin reaction to each injection which was unpleasant, (I am one of the people with an A4 list of allergies), and which I controlled by double dosing, (on medical advice), with antihistamines before and after injecting. After around 6 months my reactions started to subside and are now gone completely. I understand that this reaction at the site of injection was fairly common in the trials. Repatha has been great at controlling my chlosterol. Before taking it I was on 20mg Atorostatin (the most my body will tolerate having had full blown Rhabdomyolosis on 40mg simvastatin) and 15mg Exetimibe. These reduced my cholesterol to around 8.7 . Adding in fortnightly Repatha injections dropped it to 2.2. I'm now so use to injecting that I barely give it a second thought. A star on the calender means injection day: no problem. Repatha has given me a lifeline. I hope this answers your query. Of course everyone is different in how they repond to a particular drug regime. If you have further questions do ask.

Legend2 profile image
Legend2 in reply toAstronomyrules

thank you for answering

I to am dealing with repatha injections really well

So Nice to hear from another user

Myrahjm profile image
Myrahjm

Since I'm statin intolerant I've been on Repatha for about 4 years now and no issues. Also is fairly effective although my cardiologist always seems to want to bring LDL down lower. With Repatha it seems to stay around 70.

MountainGoat52 profile image
MountainGoat52 in reply toMyrahjm

I see you are in the USA. For the benefit of those of us this side of the pond, 70mg/dL is equivalent to roughly 1.8mmol/L. 😀

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