I have DCM and I am stable on entresto, Ivabradine and spirolactolone. I work as a teacher and have reduced my hours to 4 days. Saturday - Monday I finding I am so exhausted I am asleep all weekend. I wake at about 6-7pm for something to eat each day and then go back to bed. I never feel like I have had enough sleep or I can’t sleep. My job is very physically exhausting. I have home from being able to work full time, get home do the cleaning and meals to not being able to do anything in the house when I get home - luckily I have a very patient husband who helps. We don’t go out anymore at weekends or evenings or socialise as I am too tired. My husband misses spending time with me at the weekends too.
2 years ago after the first lockdown I found myself unable to walk anymore. Breathlessness and back and leg pain. I can walk fine now but it is still painful. How do you exercise your heart if you can’t walk for more than 5 minutes continuous? Has anyone else struggled with their mobility / walking since being diagnosed.
Thanks for your help