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[Jackle88]

Hi everyone,

I've posted a few times in the past. I'm still having trouble with what I perceive is my heart.

Since 2020 To date:

I've seen 3 cardiologists, countless ecgs, tilt table test, three echocardiograms, two 24hr holter, one seven day holter.

Apparent diagnosis:

- Symptomatic Sinus Tachycardia

- Anxiety

- Not enough weight and need to eat more.

It has been noted I have RBBB and Sinus Arythmia (breathing).

I've been through the wash a few times and recently been rejected now by Cardiology with response saying my dizziness is anxiety and that I should seek CBT.

Symptoms:

- Acute episodes of dizziness, feeling of passing out, sweating, out of breath (lasts probably 2~ minutes) - not so common at the moment as it used to be.

- Heart pounding / racing when stood up and walking around (100+ BPM) - makes life difficult even doing cleaning/shopping

- Doing bike ride (1hr) - after getting off the bike my head feels like it's being crushed, and dizziness for a few minutes.

- Doing any leg exercises at the gym or lower body - causes me to go dizzy. E.g. squat, then when I'm back standing up I get dizzy very briefly.

- after any excercise I maintain a high heart rate of 90-100 when sitting and 120+ standing.

- not often, but wake up in the middle of the night sweating and heart racing.

- changing position causes my HR to increase when sitting e.g. adjusting my position in the seat.

I am trying my best to 'ignore' the tachycardia, but I am not strong enough as when I feel or get symptoms it puts me back to square one. It's very hard to live with feeling ill daily.

I am afraid of going out for a walk or doing anything.

I do push through this and do some weights 3x a week now and cycling 1x. Even though I do this, I am so petrified of cardiac arrest or undiagnosed heart issue causing a serious issue during or after the workout. I am concerned that due to my heart beating more often than a normal person it puts me at a greater risk.

I was informed that if I gained more weight (I'm 5'11 66kg) these symptoms would go according to one cardiologist. But I have a friend who's same age and lighter than me with zero issues.

I was also told that because it's Sinus tachycardia they can't/won't treat it and leave it alone as anything else will.make it worse.

However, I am still not convinced it's just sinus tachycardia, I keep believing this is an arythmia of sorts.

I have spoken recently to the kind BHF nurse and I had the same echo that if it's sinus tachycardia it's the most difficult case as they cannot just 'fix' it.

Is there anyone else that has similar issue?

Should I just rest in the knowledge that seeing 3 cardiologists, they would have found something by now, especially sinces it's been two years of symptoms? I'm assuming something would have gotten worse by now in that timeframe.

[Hidden]

Dear Jackle88

So sorry that you are still suffering from so much anxiety over your heart.

I have re-read your posts and realise that this “ problem “ has been a constant worry for a while now.

Has that worry manifested itself with your slenderness? or have you always been so slim?

I really feel for you that the answers you have been given are not enough to help you get along with your life with any quality.

So I also can not see what I can do to help you, not only am I not medically trained but also I see more complex answers are needed to your complex symptoms.

All I can suggest is that yet again you try to obtain more information from your Drs .

I am thinking of you

[Jackle88 in reply to Hidden]

Hey Blue1958,

Thank you for your kind reply.

I've always been slender, but again I've always had anxiety so maybe they go hand in hand. Never really had much issues with a racing heart until recently and especially the symptoms I experience.

I am just trying to reach out to see if anyone else has similar issues or experience as I feel I'm literally on my own with it.

I was told by BHF nurse to post again, so I have to find people who have the same or similar issues, but I am coming up finding zero in common with people on here.

However it just seems like because I don't have Afib or something I shouldn't be posting here.

I surely cannot be alone in symptomatic Sinus tachycardia with no known cause.

[Hidden in reply to Jackle88]

Dear Jackle88

I agree that you cannot be alone with the problems that you have, it’s just that the right person has not read your post yet to reply.

All I can say is that with everything else, our moods, our frustrations , our hopes and wishes, you are never alone and if I can help in anyway with that, then ask away.

Good luck with it all, you are in my thoughts , I hope that may give you a little comfort .

[Aztec632]

Hello I have just read your post. A late return I know!!! But just to let you know that I am slim, need to eat more, have anxiety and sinus tachycardia for years. I hope you are feeling g much better now.