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British Heart Foundation

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Coconut-girl profile image
16 Replies

Hello. I'm a new member. Had a heart attack end of October. Went into A&E with shortness of breath and unbearable epigastric pain (which now turns out to be Gastritis & Duodentitis)

Had an angiogram with no blockages or damages (NSTEMI)

Discharged with the standard heart meds (aspirin bisporol ticagrelor Atorvastatin omeprazole & a Gtn spray when needed.

Cardiac Rehab, 8 1hr classes end of January 2022.

What concerns me is a telephone appt end of march 2022?

I feel totally abandoned. Everytime I feel a twitch or a pain in the chest area I panic and think the worse. Am I overthinking everything?

Apologies such a long post. Bear with me as I figure out how the site works :)

Thankyou

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Coconut-girl
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16 Replies
Nettekin profile image
Nettekin

Hi coconut girl. Sorry to hear of your heart event, but pleased you were treated for it and have rehab in place. As many of us have found, treatment for an acute event (e.g. a heart attack) is usually very good and shows the NHS at its best. However, once we leave the hospital there is the feeling of "what now?" . I know I felt very much on my own in 2019 and had to practically beg my GP after my attack for an appointment - this was pre covid. He didn't seem to understand I wanted to talk about it and ask questions. I had no warning of mine at all so I was in a whole new world of fear, new medicines and shock. I suspect your appointment in March will be with a cardiologist and assuming all is well you will be discharged back to your GP. Then you will have annual check ups. It is often at this point you need to become your own advocate - asking questions, pushing for test results etc.As to the mental side, counselling is available if you need it. Many of our members have found it useful.

It is entirely normal to question every twitch and pain, but don't hesitate to contact your GP, 111 or even 999 if the pain is strong and doesn't settle. The BHF nurses helpline through this site are very good as well for advice on many issues.

Sorry, long post but your post is a reminder of how we all felt in the early days.

Try and enjoy Christmas and best wishes for your continued recovery. X

Dear Coconut-girl

Hello and a big welcome to you.

I am so sorry that you have been left in the position of such worry.

But I’m afraid that you are so not alone.

Whatever life throws in our path as soon as it’s about our hearts then this worry can be magnified.

You need to know that you are far from being alone and as the time goes on you will be able to put your situation in to context.

This forum has helped me and many others to do just that, I hope that it will be of the same use to you.

You are in my thoughts

Coconut-girl profile image
Coconut-girl in reply to

Thankyou so much. Makes me feel so much better that I'm not alone. . Bless you :)

Nettekin profile image
Nettekin

Hi coconut girl. Hope my earlier reply has appeared for you now! X

Coconut-girl profile image
Coconut-girl in reply to Nettekin

Hi Netekin. Sadly it hasn't. But this one did 😊

Nettekin profile image
Nettekin in reply to Coconut-girl

One last try! Hi coconut girl. Sorry to hear of your heart event, but pleased you were treated for it and have rehab in place. As many of us have found, treatment for an acute event (e.g. a heart attack) is usually very good and shows the NHS at its best. However, once we leave the hospital there is the feeling of "what now?" . I know I felt very much on my own in 2019 and had to practically beg my GP after my attack for an appointment - this was pre covid. He didn't seem to understand I wanted to talk about it and ask questions. I had no warning of mine at all so I was in a whole new world of fear, new medicines and shock. I suspect your appointment in March will be with a cardiologist and assuming all is well you will be discharged back to your GP. Then you will have annual check ups. It is often at this point you need to become your own advocate - asking questions, pushing for test results etc.As to the mental side, counselling is available if you need it. Many of our members have found it useful.

It is entirely normal to question every twitch and pain, but don't hesitate to contact your GP, 111 or even 999 if the pain is strong and doesn't settle. The BHF nurses helpline through this site are very good as well for advice on many issues.

Sorry, long post but your post is a reminder of how we all felt in the early days.

Try and enjoy Christmas and best wishes for your continued recovery. X

MONIREN profile image
MONIREN

Welcome, you will get plenty of reassurance here. Many of us live with angina, it is difficult to know when, when do I go to A&E, you need to listen to your body. Everyone handles it differently, but stress doesn't help. Mine is stress related. Don't stop living your life to the full, otherwise what is the use? Follow guidance from health professionals only, so many kind friends saw something once. Take care. Moni

Coconut-girl profile image
Coconut-girl in reply to MONIREN

Thankyou Moniren taking the time to write. I Shan't complain. I'm thankful we have a wonderful NHS service. Times are challenging indeed so I guess one shouldn't take things for granted. Wishing you good health my friend ☺

Milkfairy profile image
MilkfairyHeart Star

Hello Coconut-girl,

Did your Cardiology team say why you had a heart attack without any blockages?

About 10 % of heart attacks can occur without permanent obstructions.

Known as MINOCA, Myocardial infarction non obstructive coronary arteries.

The Cardiac Rehab nurses are usually a great source of help.

Perhaps give them a call for support.

Another option is to contact the Cardiologist's Medical Secretary and ask for a cancellation so you can be seen sooner.

Coconut-girl profile image
Coconut-girl in reply to Milkfairy

Hello Milkfairy 😊Nobody has said anything to me. I was discharged and that was it!

Is there a Cardiology team?

Will ask the Rehab nurse when I start my Rehab course end of January.

I did call the cardiologist appointments and was told that was the waiting time...

Thankyou for taking the time to write.

Keep healthy & safe ☺️

Milkfairy profile image
MilkfairyHeart Star in reply to Coconut-girl

When you meet the Cardiac rehab nurses in January ask them to explain everything to you.They will be able to access your medical records.

There should be some information on your discharge summary too.

Usually a patient is allocated to a particular Consultant Cardiologist and their team.

You then see or talk to a member of this team in clinic/ or by phone.

Unfortunately care has become disjointed because of the extra pressures of Covid.

The BHF helpline is another great resource, where you can speak to a Cardiac nurse.

I agree with Moniren, a good Cardiac Rehab nurse can be worth their weight in gold!

MONIREN profile image
MONIREN

By the way, in rehab you have access to cardiology nurse, they closely monitor your health, ask for a contact number. I'm still in contact with my first nurse from 2011. She has helped me through times where I lost focus. Take care. Moni

Coconut-girl profile image
Coconut-girl in reply to MONIREN

Aww bless you. That's great to know. I shall surely do that.I had wondered earlier who a point of contact would be..

Thankyou Moniren 😊

GFFF profile image
GFFF

Hi Coconut girlI am fairly new to this too, really bad timing with the pandemic as the NHS are more stretched than normal. Like you I feel a bit out on a limb with such a long wait time for support, but the guys n gals on here are great.

Good luck on your journey

Coconut-girl profile image
Coconut-girl in reply to GFFF

Thankyou GFFF. Your right, times are strange but we'll get there in the end😁.Hope you have a good recovery. I'm learning all the jargon as I go along x

Alex09 profile image
Alex09

Hi.. hope you are ok. I’m much the same, heart attack and stents. Bag of medicine and discharged. This was my first stay in a hospital and beside a course of antibiotics many years ago, my first medication to take. I feel anxious and uncertain as to the future. I’m off work but feel pressure to restart. I get breathless when I try to exercise. Pre heart attack I was working from home, pretty isolated but feeling ok about life. Now it’s all like a snow globe shook up… worried about health, work, future.. One day can change so much..

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