Drug deal : So today I meet my cardiac... - British Heart Fou...

British Heart Foundation

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Drug deal

30 Replies

So today I meet my cardiac rehab nurse , not in a hospital, not in a cafe or car park , but in a wasteland of an old hospital building, it looks like I’m going to buy drugs of her 😂😂 anyway , this will be the third meeting and the past two meetings have lasted five minutes tops and all concerns I have nothings been done , she says ok I’ll make a not of that , then nada 🤷🏼‍♀️🤷🏼‍♀️🤷🏼‍♀️ What’s the point of this ?? She handed me a suspicious looking brown envelope last time with paperwork on sleep ,, why when I sleep ok? So I meet her in 30 mins travelling to the middle of nowhere for ? Sorry I’m just moaning cus it’s a big out of my way and for no reasons that benifits myself .

30 Replies
Thanksnhs profile image
Thanksnhs

Morning is there not a local clinic you could go to, at first I was going to the hospital and then I discovered I could go to a local clinic, they forgot to mention it, I could walk there it was so much better char

in reply toThanksnhs

Oh yes it’s in the grounds of a rehab building , not even in the car park of the rehab building but you have to turn a corner into the waste grounds .. it’s absolutely crazy !

Niki_ profile image
Niki_ in reply to

Sounds absolutely crazy lol

Gosh that sounds strange!? I've not had ANY face to face meetings at all, and no follow up since my heart attack and stent fitting?? Itscall done over the phone which is not really ideal .

in reply to

Hi doora I think we had our heart attacks at roughly the same time , mine was on the 15th April this year. This was my third meeting with her , next week will be the last she told me today .

Jules2021 profile image
Jules2021 in reply to

Hi Doora. I had one face to face meeting with rehab nurse since leaving hospital 8 weeks ago. Really feels like they just throw you out of hospital to get on with things when you have so many questions and what ifs? Have appointment with consultant on 20th July and hey presto...its a telephone call! How can he tell if im fit for work or how things are going inside my heart if he can't even see me? Causing a few sleepless nights and not just a few tears😢

in reply toJules2021

Hi jules mine was 8 weeks ago as well , on the 15th April , the questions I have are unreal and more to the point,unanswered. I did ask about when allowed to work and I was told due to my trade ( chef) that it’s best I wait 6 months due to it being a hard job heavy lifting stressful and on my feet for a long time . Honestly though I can’t see myself ever going back to it now , it’s just too hard on the body . Money wise gawd I have nothing ! Bill coming out my ears and causes a good few sleepless nights , I’ve had no answers on benifits either . Now they think I may have AF , whatever that entails . Anyway , if I was you I’d call them up and ask them for a face to face explain you have questions, I wish you tons of luck

Jules2021 profile image
Jules2021 in reply to

Thank you. I work in the laundry in a nursing home so on my feet for 8 hrs and it can be heavy at times.Being a chef would be very fast-paced and heavy work i imagine!

The most suport i have got is from reading questions and replies on here so im glad i found it.

Have to ring GP tomorrow to arrange cholesterol test to check im on right dose of statin,not looking forward to it as rehab nurse told me i may encounter problems as they sometimes argue its the hospital's job to do it(finance as usual).

Hope you get your answers soon x

in reply toJules2021

Hi jules , in regards to your job , I worked as a head chef in a nursing home for four years the laundry room was next to the kitchen in the basement, your job is very hard , you have to think of the huge trolleys you need to pull and push around while collecting the laundry, the pulling and pushing of wet laundry out of the machine into the dryer etc ,, that’s a lot of upper body moment , I’m no nurse but I would definitely recommend that you take as much time off as possible , your job is very hard going xx

Jules2021 profile image
Jules2021 in reply to

Thank you so much. X

Ourdill profile image
Ourdill in reply to

I'm having the same problems a year on. The odd phone call is not acceptable when I've missed out on ALL rehab. Physically in fine but mentally I'm a wreck. I've just written a post on here about it

If you are not happy/impressed with him/her, ask for someone else!

I wasn’t impressed with my HF nurse, so called her office and told them such, they offered someone else, which as I was not in HF I declined.

in reply to

Ach naw Gaz , it’s not so much I’m not impressed with the lassie it’s more , what’s the point ?? Nothing is happening apart from me travelling to the middle of nowhere too meet her beside her car for five minutes, next week is the last time and today she gave me a questionaire asking if I thought that outdoor rehab was worth it ,, you can imagine my answer to that .

0163SLH profile image
0163SLH

Can you not request telephone call ? Till all this lock down is over . My cardiac nurse sees me face to face and in her office

in reply to0163SLH

I did say the last time would this not be simpler over the phone but she didn’t recently reply to me , I’ve only one more appointment outside to go . I thought when it started it would be a few of all meeting up in some lovely garden chatting and maybe some light exercise but it hasn’t been that at all .

0163SLH profile image
0163SLH in reply to

😂 that's just wishful thinking ! I guess they can say they are trying at least. Wonder what the outcome would of been for the appointment if it was raining 🤭

in reply to0163SLH

I asked that !! She said we would use umbrellas 😂😂😂

0163SLH profile image
0163SLH in reply to

😂 ummmm I bet they would !

FiftyNotOut profile image
FiftyNotOut

How bizarre! All my rehab has been over the phone or video calls. Much more sensible. Maybe she just really hates technology?? Surely if she’s going to do it in a bit of wasteland she could at least get a few of you along at the same time, so you can meet other people going through the same thing?

in reply toFiftyNotOut

Ikr!! Makes no sense to me , there is a rehab building and the carpark she could have used but no , turn right into the wilderness and meet me there . Crazy

Exie8 profile image
Exie8

My husband had emergency AVR, MVR and bypass in July 2020. After he was discharged from hospital at the end of August he was followed up by phone by cardiac nurses with one phone appointment with consultant in December. Nurses discharged him in January this year and since then he has felt a little abandoned! No contact with GP either - just repeat prescriptions. He has an actual appointment with a cardiologist tomorrow after having an echo 3 weeks ago. He's terrified about what the consultant might be going to tell him! I'm worried too - not least because I won't be able to go in to the appointment with him. These are difficult times! Wishing you well.

080311 profile image
080311 in reply toExie8

Hi,

After my AVR had my check up with my surgeon 6 weeks after surgery. My next appointment was with my Cardiologist 6 months later he just ticked the boxes asked how I was doing. Everything was fine he discharged me back to my GP who then took over my care again. Have a yearly echocardiogram and yearly drugs check with my GP.

I wouldn’t worry overly wait and see if he hadn’t seen his cardiologist since his op could be the check up to discharged him back to his GP.

Will have my fingers crossed for him.

Best wishes Pauline

Exie8 profile image
Exie8 in reply to080311

Thanks Pauline.

Exie8 profile image
Exie8 in reply to080311

Good news! Cardiologist happy and echo showed new valves working well. Best of all, I was allowed to go in with him. Thanks for your support.

080311 profile image
080311 in reply toExie8

Great news, on both fronts results of echo and you being allowed in. Now have a great weekend.😂

Best wishes Pauline

Exie8 profile image
Exie8 in reply to080311

You too

cakesandbakes profile image
cakesandbakes

I am now 10 months past heart attack and stents and have never had rehab just a couple of phone calls. I live in east sussex. In fact I have never seen a cardiologist or any consultant in spite of on going problems just a phone call for which my gp has to badger them for. I do get annoyed when the news goes on about GPS not doing face to face but don't mention hospitals. I have joined my local pool for gentle water therapy £5.00 per week and £25.00 Joining fee.

in reply tocakesandbakes

It’s shocking isn’t it , yes I have seen a rehab nurse outside in some wasteland but it just seems such a waste of my time , money and energy for her talking to me for five mins , the place is a good 15 mins brisk walk from any public transport and that’s if you can find it . I have an appointment next week inside a hospital with another nurse to go over my medication as well , so I honestly have no idea what the hell this outside thing is for and I will be saying so in the paperwork I’ve to fill in ,, maybe it’s a trial thing ??? Hell knows. She did say yesterday there is a good change I have AF , so she will red flag this with the team 🤷🏼‍♀️🤷🏼‍♀️ . Covid has a lot to answer for hasn’t it . I hope you get some rehab soon or some better care soon. Much love xx

cakesandbakes profile image
cakesandbakes in reply to

Thank you. I forgot to say I was asked to fill in paper work for rehab nurse just so they could document I had been contacted and been through the process. I refused. It's not rehab and is as much use as snow in harvest time.!!!

in reply tocakesandbakes

Haha that’s a perfect way to see it ! Yes it is , I’ll be filling this in before I go next week for the last time and I don’t think they will find it an enjoyable read . 😂😂

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