I have had several falls in recent months. I have no body strength and my wife has to help me shower dress and sometimes help me get up from a chair. I can now only walk short distances when I go out for my daily walk and feel very tired and weak all the time. When alone if I fall I stay on the ground because my body has no strength to get up
I have had cardio tests at the hospital and today I spoke to a Cardiologist who says my symptoms are not cardio and almost
certainly neurological. I have high blood pressure but he does
not want to adjust medication until I have been assessed by a
Neurologist.
I have been waiting since January for an appointment and
now my June appointment has been postponed until July.
I have been put on the list for a cancellation.
Has anyone had similar symptoms?
If not MS what else could it be?
Any advice welcome as I am very anxious awaiting the neurology
appointment
Thanks
Steve
Written by
sunset709
To view profiles and participate in discussions please or .
Also....re cancellations.Let them know you could come at a few hours notice...if you can mange it that is.I have said that a few times .My huband got a dental appoint. in our local hospital for a tricky extraction within a few hours due to him being able to slip in quickly to a cancellation.
This is a good idea by 10gingercats. It’s what I did with my heart surgery and they brought it forward. Also tell your GP that the symptoms are getting much worse and they could help push the consultation forward. Good luck and all the best.
What medication are you taking? PPIs (omeprazole etc) prescribed to protect the stomach can stop the body from being able to absorb vitamin b12 from food. Metformin for T2 diabetes can have a similar effect. Low vitamin b12 can cause neurological symptoms, fatigue, brain fog. There is good information on The Pernicious Anaemia forum here on Health Unlocked.The NHS website also has good information, Do notice Dr Google as there is loads of misinformation out there too!
If any blood tests are done ask for a copy of the results as many results at the low end of the range can be taken as ‘normal’ or in range and ignored, when in fact they are too low for the person being tested.
Hi - what a rotten time you’re having. Two years ago I had open heart surgery to replace my aortic valve and last year I was diagnosed with MS. I too am in my late 60’s. People often remain undiagnosed with MS, believing their symptoms have some other explanation - I thought I had a problem with my knee which was preventing me from walking properly! Everyone’s MS is different and your symptoms sound like they could be many things. The MS Trust and MS society are two good places to start if you want to do some research.
A concerned neurologist will arrange MRIs and help get you a diagnosis but the delays are annoying. Do please let people know you’re finding this very worrying and try and get, at least, a phone consultation. All my appointments are put back months because of Covid.
One thing I would say is MS is a condition that you live with, like many heart conditions and IF diagnosed, you will have help to find your way.
Very best wishes and keep us posted with your progress. Sue
My wife has had MS for 25 years yet has none of the symptoms you describe. If your GP suspects you have MS this can be confirmed through a CT or MRI scan. A neurologist will be able to see signs of demyelination in your brain, spinal cord, or brain stem from the images produced - the lesions are usually quite obvious.
Their symptoms don't match yours at all. Between the 5 people , two have/had the relapsing type of MS, the others had the type that steadily gets worse. My aunt who had the relapsing type would go for months or years then suddenly have some sort of attack at night and wake up with more of her movement gone. She could then go another year or more without getting worse. My friend now has the type that steadily gets worse and, after 30 years can't even feed herself. She had a lot of pain but it's stiffness in her limbs, numbness and tingling that affects her worst . Not particularly weakness that you describe. What I'm saying is that you might have MS- I'm no doctor- but what you describe doesn't match the way any of these people have been
I think there is some confusion here. I don't have MS. I was replying to the original post, (agreeing with you), that his/her symptoms could be any number of things, but MS doesn't seem to the obvious candidate. I'm basing that on caring for an MS patient for over 20 years.
I am totally confused,I have had a 24 hour ecg and then bp monitor and a cardio echogram and yesterday a telephone appointment with a heart consultant. He is almost certain my symptoms
are neurological. As a final precaution he is going to book me a tilt test but will be a
delay because not urgent.
So if it is not my heart what is it.
I just hope I can get a neurology appointment.
The hospital gave me a series of blood tests including B12 ( because I am on Metformin) and
they were all normal.
I was impressed with the heart consultant yesterday. He was the first medical professional who had read my medical notes and seemed interested in my case
Sorry, I just lost mine before I intended sending it. Was just wondering if it could be CVD, cardio or cerebellar vascular disease. Mine is driving me mad at the moment! No falls (touch wood, since falling with a plate of cat food, I was carrying and being cross because they were fighting, and landing with my face in the plate, luckily that made me laugh, because I did look sight with it dripping down all over my top). but it has got worse recently, I do get very wobbly and rather scared of going out (couldn't get on a bus anyway), also l have just had osteo-arthritis diagnosed in my knee (already had it in thumbs) extremely painful currently and limiting my mobility drastically. Problems with heart not anything like as difficult! You can't make your own diagnosis but I always think whatever it is much better knowing so hope you can get a diagnosis soon
The question I always ask people with unidentified widespread problems is have you at ANY time been prescribed Fluoroquinolone or Cipro antibiotics. They can affect you right away or lay dormant for some time or can be triggered by a different type of medication.Google Fluoroquinolone Toxicity Syndrome many of its problems are similar to those who have Chronic Fatigue Syndrome..
It gets mentioned on here but it unfortunately does not have its own section
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Anxiety and chest pain sorry it's a long one 
Rosuvatatin fatigue
What should you expect from your GP after major heart surgery, shirt term and long term?
Do I need to worry?
Do I have angina? Please help
