My PVC story

[Bella1908]

Hi guys, seems like I’m a little late as well but I hope my story is able to help calm some of you who have a similar issue. 5 years ago I was diagnosed with PVCs, I’m 27 now. I cut off all caffeinated drinks and stopped drinking. I did the ablation twice, at two different spots in the heart and the second one was done only recently about a month ago. Hoping that it might be completely gone but guess what, the day after my op, it came back. One month later after my op, I can still feel the skipped beats. EP said it might be the heart thats ‘healing’ but also it can be because ‘it’s back’. I tried beta blockers and magnesium, though it helped to lower the % of PVCs, I can’t really tolerate the side effects of bisoprolol, hence my decision to undergo the second ablation. Believe me, I was so upset and slightly depressed knowing what I’ve been through and the stubborn PVCs are back. My EP said to me that the lesion in my ventricle is so close to my aorta and coronary arteries, knowing where it is now, he will not recommend for any other invasive procedure unless it’s really affecting me badly. I know I tried my best, taking medicines and at the same time 2x the ablation. Since now it’s back again, all I can think about is try to live a healthy lifestyle and be happy. It’s been so long since I’ve been worried about my heart I kinda take it in away that I’ve done my best and since it’s back, I can’t do anything about it. Therefore, now I turn my focus to just being happy, try to worry less and live life to the fullest. I hope you do the same. Whether or not I’ll be back on medication is still a question. I’m not planning to take them unless I really need to (e.g during pregnancy/ affecting my quality of life).

Thank you for writing in this forum. I felt I wasn’t alone. Got some comfort from here (:

[fizzy42]

Hi Bella im sorry your having such a rotten time with PVC'S. My experience is i had a tooth removed when i was 32 with caused a huge infection in my jawbone, and unfortunately it affected my heart, i have 2 leaking valves now, also AF, lots of ectopics. My experience of Betablockers, ive tried a lot of them. I was on Propranolol for 25 years, but unfortunately my heart problems got worse and i couldn't up the dose as i have asthma. Propranolol was a good one i felt pretty good on it for many years, have you tried that one? When i got worse ive been on Cardivelol, Metropolol, and a different one i can't remember! The Bisoprolol took a while to adjust too, it affected my breathing to start with, tiredness which i still have to some degree. I take 10mgs a day of Bisoprolol, with other meds, and i think i'll be on them for life? Its definetly worth sticking with them if you can? I do hope you find something you can take if you can't have another ablation. Wishing you Good Health and A Happy New Year, Lynda xx

[Lovefrance in reply to fizzy42]

Hi Bella, so sorry to hear your problems. I had two ablations and they didn’twork for me. I have Af and agree with fizzy42, that if your doctor can find

a beta blocker that works for you, that would be the way to go. You need to

persevere with them for a while. I’m assuming you have seen a consultant.

I am sure with the right help, this can be sorted . Dr. Andrew Grace in Cambridge is probably the best in the country.Look him up online.

Hope this helps. Take care. From lovefrance.

[Niki_]

Hi BellaHave you tried any other natural supplements to reduce your PVCs ? I take Taurine ....L-arginine.... potassium...and coQ10 3 times a day... I just did not want to take a beta blocker until I tried all natural options and life style changes...

I would say it’s reduced my PVCs 80% or more .. some days I would say they are reduced 99% ...before taking these supplements my pvc burden on a 24 hour monitor was 12.8 % . .. I will also note my echocardiogram was normal.