Is this something to worry about?

[Pink16045]

I have been diagnosed with Lown- Gangong- Levine Syndrome. Does anyone have any information on this? I am not due to see Cardiology for another few weeks and have not been explained what this is and how to manage scary episodes.

[Tessie28]

Came up with this online. Lown–Ganong–Levine syndrome (LGL) is a pre-excitation syndrome of the heart. Those with LGL syndrome have episodes of abnormal heart racing with a short PR interval and normal QRS complexes seen on their electrocardiogram when in a normal sinus rhythm.

Hopefully you will get to talk to someone soon. Why not ring the BHF nurses?

[Visigoth]

I was diagnosed with LGL about 25 years ago. The basis for diagnosis is having a short PR interval as the other poster says. However after a scary episode about 10 years ago I had an EPS done at Harefield and the consultant there (who thought I might have Wolf Parkinson White) said that they don’t even diagnose patients as having LGL any more because it’s quite benign. It remains the only diagnosis I’ve ever had and I do get scary palpitations/ectopic beats from time to time, for example over the last two weeks. But before that I hardly felt a thing for about nine years! It’s hard to manage scary episodes because we inevitably panic and that makes things worse! But I have been assured before that there’s nothing to worry about so the best thing to do is to hang on to that fact and remember it’s a benign condition. One consultant I spoke to showed me how to massage the side of my neck when I feel palpitations and that has helped sometimes.

[Pink16045 in reply to Visigoth]

Do you have any information on how to massage the side of neck to help symptoms please?