AVR for Infective Endocarditis - British Heart Fou...

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AVR for Infective Endocarditis

Oldmasons profile image
8 Replies

My husband had AVR in March 2019. He had Infective Endocarditis in September 2020 and had to have a replacement AV and a repair of MV (on 15 Oct)

18 hours after the operation he had a stroke and has lost his sight (also very confused). Nobody can tell me whether his sight will return. Did this happen to anyone else?

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Oldmasons profile image
Oldmasons
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8 Replies
080311 profile image
080311

Hello,

I had my Aortic valve and bypass done 4 years ago, my husband had a stroke 5 weeks after my surgery. He lost his left side leg and arm and hand. He as also lost a lot of his sight. He as half in left eye and right eye he as a quarter left. He can now walk a little outside with the help of a delta walker, his sight hasn’t come back they said the part of the brain at the back that controls sight as gone completely the pathway to his leg and arm start to find a new ways to control these and starts to happen within days of the stroke. Being confused John was very confused for quite some time he as no memory of the first couple of weeks after the stroke. We are now 4 years on life is certainly different I am now is Carer he still gets frustrated he was a very active man and now finds things he always as been able to do impossible.

I wish you and your husband the very best

Pauline

Oldmasons profile image
Oldmasons in reply to 080311

Thank you, although I am sorry to hear your situation, it does make me feel better knowing what the future may hold.

Best wishes to you and your family

080311 profile image
080311 in reply to Oldmasons

One of the things I was told the brain is so remarkable It will be sorting out ways of replacing those pathways that have been lost with new ones, the first 12 weeks are vital and him working hard with his occupational therapy and physio will make such a difference to his future.

Pauline

Janma123 profile image
Janma123

I’m sorry to read of your husband’s stroke. My hubby had a stroke 8 weeks after a quadruple bypass. He lost some of the sight in his eyes (he had no vision on his right at all) but it improved slowly over time and he is now able to drive.

He was very confused for a while but that also improved with time. He was very confused after his surgery too so the fact that your husband’s surgery is so recent that will be contributing to that too.

Best wishes to you both. Remember to look after yourself too - I didn’t and ran myself into the ground when my hubby was in hospital and by the time he came home I was a wreck!

Jane

Oldmasons profile image
Oldmasons in reply to Janma123

Thank you, that is so comforting to read. I appreciate the glimmer of hope!

And yes the twice daily visits to the hospital are quite tiring aren’t they

Janma123 profile image
Janma123 in reply to Oldmasons

When Bob was in it was open (all day) visiting and I went to many of his therapy sessions too. I would leave home at 9, it was an hours drive and I would get home again about 10 at night. There were a few upsides too! I was allowed to take the dog into the ward which was great for both of them. I took in something for lunch for us both as Bob couldn’t cope with hospital food and we ate together in the evening as I got a takeaway or a hot chicken, salad and a crusty loaf. We also had the chance to go out in the afternoon as he improved and could get into the car. We would go for a drive and something to eat as long as we were back for his evening tablets!

Take care.

Jane

Oldmasons profile image
Oldmasons in reply to Janma123

I hope we can do this too. Currently Alan is still in intensive care but due out to a ward tomorrow

Janma123 profile image
Janma123 in reply to Oldmasons

It is very early days for Alan and for you but the human body and brain has amazing powers of healing.

Keep us posted.

Jane

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