My Partner may have Hypertrophic Cardiomyopathy,

[BearandMoos]

My Partner may have Hypertrophic Cardiomyopathy, His dad has been diagnosed with it but due to us trying to buy a house get a mortgage ect we have been advised to wait for the test to see if he has it once we have bought somewhere as it can affect mortgages and life insurance. He will be having the screening but the actual test would have to wait. During his consultation it was mentioned regarding partners and having children and we were advised that if he was to be diagnosed with it then its likely that I would have to have treatment where they would extract the gene causing the condition and have my eggs replanted. Please can anyone give me some advice if they have gone through the same procedure or in the same predicament as us?

[MichaelJH Heart Star]

Hello and welcome to the forum! You should find the following link useful:

bhf.org.uk/informationsuppo...

Being a lifelong Type I diabetic life, health and travel insurance have always been problematic. I have now reached the age where travel insurance is the only one that is relevant (once CovID becomes insignificant). I would be very wary of withholding information from an insurance. If in the event of a claim they find out he was "under investigation" they are unlikely to pay out. And they will dig deep to avoid paying!

[BearandMoos in reply to MichaelJH]

Thank you for your advice x

[CPL593H]

Hi, I have Hypertrophic Cardiomyopathy. I live with it reasonably well. I’m male and 51. I suffered a cardiac event 12/06/2019. That’s when they found the HCM. It’s meant a change of job, I was self employed doing a fairly physical job. I got another job November 2019 in an office, which I am still doing working from home. I look after myself and have a healthy BMI. My exercise is gently, walking a Labrador twice a day and being a functioning family man with a wife and daughter (14). I am in the process of getting my genes tested for HCM markers. I had the sample (blood) removed a while back and expect results around Christmas. It takes quite a while. In the meantime my mother (father is deceased), two brothers and my daughter have had echo scans, but nothing has showed up on them. They will get the gene test if they find a marker in my genes. Sorry I have no experience of the pregnancy aspect.

[SarahJLD]

If you look at the information pages on the Cardiomyopathy UK site they have specific info sheets for life insurance and other topics that might help you.

I might be wrong but if the screening identifies any issues you will have the same problem with mortgage etc as you would if the genetics comes back positive. The cardiomyopathy U.K. helpline might be able to advise you further.

I wasn’t aware we had reached the point where they could replace genes in embryos for HCM? Remember if he has the gene each pregnancy has a 50/50 chance of the baby also having the gene. Knowing you have the condition means you are monitored and symptoms managed, the younger the condition is picked up the easier it is to manage.

I have HCM and two children, both are gene free. My mother and sister have HCM but my brother opted not to be tested.