Worried Mother):

[jdln]

Hi all, my last post on here was around 2 months ago, just after we had been for our first check up appointment at the LGI (my little boy who is now almost 4 months has been diagnosed with mild pulmonary stenosis). I had a call from the hospital yesterday to arrange an appointment for him to go next week for his 2nd check up. Since the phone call I feel I am an anxious mess! Its like all the worry has hit me hard after practically forgetting about it for the past month and a half as my son isn't physically affected too much by his PS, well apart from the last week or so I have noticed he is sweating a lot more, after some Google research I found it could be because his heart works faster to pump his blood around. We have been advised that only 1 person should take my son to his appointment so me and my partner have to decide, I really want to be the one to go and be there for him but I'm scared of hearing them say something I dont want to hear (fingers crossed they dont!)

Sorry just kinda letting it out to hopefully people who understand, if I say anything to my partner about it all he says it 'hes fine, it will be ok' which is good I guess but my anxiety means that isn't enough for me.

[Hidden]

Hi, sorry to hear about your little boy's condition. Your worries and reaction are all perfectly normal and understandable. Share your worries with your partner and the doctors. Your partner is doing his best to reassure you. The doctors can also do this in a more specialist way. Regular check ups are quite normal for this condition so do not be worried just because you have been asked back. If it is mild the problem may not require any treatment other than regular check ups. He has been called for a second check up - that's normal.

Be wary of using the internet to self diagnose! It can provide a vast amount of information, but also tell you stuff that is completely wrong or inappropriate for your situation. When you do use it, make sure you use official sites like the NHS or BHF. Not the doctors of Mum's Net and Facebook!! The people to ask are the doctors. Make a list of questions you (and your partner) have and ask them when you see the doctor. Tell the doctor of your fears. They are the best placed to reassure you.

Only one of you is allowed to go with him at the moment because of the Covid-19 problems, so you will need to rely on the doctor and staff for support. You have allowed yourself (and it's easy to) to start worrying about things that may not be required or even relevant. There are many reasons why babies sweat. Firstly their temperature regulation is not working properly in their first year, or they may have a mild cold! All perfectly normal! Discuss these things with your health visitor, practice nurse, or GP.

I hope I have managed to give some reassurance and that your worries are completely unfounded. Take care.

[Handel]

I think Flutter and Thatwasunexpected have said it all. We're all thinking of you, your little man and your partner.

Keep in touch. I think sometimes it's really helpful to come to this site and share your fears and good news. Goodness knows, I've done this many, many times!! xxxxx

[flamepoint]

If the Doctors's agree could your partner join in by use of a mobile telephone on speaker phone or maybe after any necessary tests discussions with you both could take place outside the hospital building, maybe in the car park. These current restrictions are compounding what is already a stressful situation. Hopefully there will soon be a relaxation of the rules. Best wishes