Defribrilator: While I was in hospital... - British Heart Fou...

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Defribrilator

Mollycorn1936 profile image
14 Replies

While I was in hospital with angina I couldn't stop with spray the cardiology team turned off my defibrillator. I had signed for DNR and this apparently was the next step. Although it has not fired in a long time it still feels a bit strange.

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Mollycorn1936 profile image
Mollycorn1936
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14 Replies
Lezzers profile image
Lezzers

I am very sorry to hear how poorly you are. Its a very brave decision to have your ICD turned off. I hope you and your family are being adequatey supported. Best wishes to you & your family

Mollycorn1936 profile image
Mollycorn1936 in reply toLezzers

Thanks Lezzers the cardiologist was very suportive and I also have had support from St Lukes Hospice where I attend on Fridays.

Lezzers profile image
Lezzers in reply toMollycorn1936

I'm glad to hear you're getting hospice care, they are so good for keeping you comfortable, helping with form filling concerns worries etc.

cowparsley profile image
cowparsley

Difficult to know what to say but my very best wishes to you and your family.

Love100cats profile image
Love100cats

You are so brave. My husband has a defib which has never fired but he is now in end of life and refusing to have it deactivated. I am so scared. You have saved loved ones from a lot of extra anguish. I'm reassured by your last words that it feels a bit strange. Well done for posting this message. Goodness knows how many people you have helped. Xx

Mollycorn1936 profile image
Mollycorn1936 in reply toLove100cats

IT WAS EXPLAINED TO ME THAT ON Rre occasions the heart starts beating fast and the defibrillator keaps firing. Imagine the distress to loved one's this would cause. I don't consider myself brave just sensible. Thanks for your kind words.

Lezzers profile image
Lezzers in reply toMollycorn1936

My husband has an ICD and we were given the same explanation, which would of course be very distressing for loved ones. I have just seen your other post regarding time & I really do hope you get that extra time. Thank you for posting. Xx

Calliope153 profile image
Calliope153

Best wishes to you Mollycorn x

Maisiemay13 profile image
Maisiemay13

Sending best wishes Xx

HHH2017 profile image
HHH2017

Sending ❤️ And 🤗 to you and your family. Thank you for sharing and helping others xxxxxxxxxxxx

SpiritoftheFloyd profile image
SpiritoftheFloyd

Hi Mollycorn

I've just read your post. I'm at the other end of the spectrum in that I've just had an ICD fitted 2 weeks ago , but prior to having it fitted the process of having it deactivated and reasons for doing so were explained to me.

It's hard to know what to say in these situations, but thank you for posting, it's something a number of us may need to face at some point. Best wishes to you and your family

Mollycorn1936 profile image
Mollycorn1936 in reply toSpiritoftheFloyd

I wish you well. My defib fired three times but hasn't fired for years so I assume the medication is doing its job. Thanks for your kind words.

Plum53 profile image
Plum53

Sending you lots of love and hugs xx

siouxbee19 profile image
siouxbee19

Blessings to you and your family, what a brave and generous soul you are for sharing this with us! I thank you for clarifying something I've always thought about, but never got an answer to, until now. Much peace and comfort sent your way...🙏🕊️

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