cardiac MRI scan: Hi all I now have... - British Heart Fou...

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cardiac MRI scan

Mijnhart profile image
5 Replies

Hi all

I now have had my cardiac RMI and structurally all seems OK. It stated in the letter that there was and I quote " generalised inducible circumferential subendocardial hypoperfusion which may reflect inducible microvascular ischaemia ". What exactly does that mean ?Does that mean I have cardiac microvascular disease? And what is the treatment? My symptoms are extreme fatigue/weakness and very short of breath even just walking around the house. Ordinary house hold task I cannot carry out.

It all started about 4 years ago with mild breathlessness and short stabbing pains in the chest, gradually over the years getting more pronounced as the years have passed. It is quite incapacitating and I do not seem to get an answer from the health professionals as to what is going on. Am taking nitrates and calcium channel blockers and furosemide. But the symptoms are becoming more pronounced by the day. Any advice much appreciated. Many thanks.

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Mijnhart
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Milkfairy profile image
MilkfairyHeart Star

Hi Mijnhart,

Welcome

The BHF have this information about Microvascular and vasospastic angina which you may find helpful.

There is a growing awareness of MVA within the Cardiology world and the treatment is through medication. However it is poorly understood and recognised so a bewildering condition for patient and Cardiologist alike.

bhf.org.uk/informationsuppo...

bhf.org.uk/informationsuppo...

There quite a few of us with either MVA or Vasospastic angina or some like me both on the forum and I am sure they will be along to share their experiences too.

It is really important to establish a good relationship with your Cardiologist and then a process of trial and error to find the best combination of medication that will work best for you.

Mijnhart profile image
Mijnhart in reply to Milkfairy

Thank you so much Milkfairy for your reply. My cardiologist has not offered me any further appointment, he wrote that the findings are reassuring. Nevertheless I am very symptomatic and feel despondent in that I do not know where to go from here. He did not suggest any change of medication and suggested lung function test, but that was done a few weeks ago anyway, and lung function was OK. So maybe he had not read the notes when he send me the letter. I understand from the literature that micro vascular disease is difficult to diagnose and maybe some health professionals are not that familiar with its presentation and maybe we all differ in how we present and how we are affected. Again thank you and all the best to you.

Milkfairy profile image
MilkfairyHeart Star in reply to Mijnhart

I suggest you ask for a second opinion ask to be referred to a Cardiologist with some knowledge of MVA or is willing to learn. Be prepared to go through PALS if necessary send in copies of the BHF information and the link to the article below.

The response the Cardiologist reflects their lack of knowledge of the condition.

Here is an article for your GP or Cardiologist written by Prof Colin Berry's team in Glasgow. He is a BHF funded researcher into MVA and VSA.

There are a handful of specialist in the UK who you can also ask to be referred too.

heart.bmj.com/content/104/4...

Nedragymni profile image
Nedragymni

Hi Mijnhart

I am being treated for MVA with Nitrates and Beta Blocker and depending on my environment I feel kind of ok. Have real issues walking and have become very Weather sensitive. As for information and questions answered...... Doctors and Cardiologists are very vague. Feel I have learned more about it on here. Welcome to the club.

Mijnhart profile image
Mijnhart in reply to Nedragymni

Thank you Nedragymni for your response. I most certainly have issues around walking. Have to use wheelchair for only short distances. Just about able to walk round to my neighbour next door. Have been on betablockers and isorbide mononitrate with not any improvement in walking distance nor breathlessness. It is good to have this forum to seek answers and support. So again thank you

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