Didn't take the hint first time around. - British Heart Fou...

British Heart Foundation

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Didn't take the hint first time around.

DWT123 profile image
14 Replies

Following the posts on this forum has really helped me so I thought maybe my own experience might be of interest or help others. I totally accept we are all different, have different experiences, health journeys and situations. This is part of my journey and apologies in advance for the long story!

Four year ago, aged 60, I had 2 stents to the LAD to treat the angina I'd been experiencing. For some reason I decided that I'd been 'fixed', post op MRI was clear and I didn't need or have time to follow all that stuff they told me about rehab and a long term healthy lifestyle. They told me not to drive for seven days, I didn't drive, but hopped on trains after a couple of days to get to business meetings. Told myself that as a self employed person I didn't have the time to be 'ill'. Logically I think I knew I'd had a warning to take better care of myself but emotionally just didn't take it on board.

Four more years of jumping on planes to various parts of the world, staying in lots of nice hotels, 'enjoying' the success of having written a business book, the buzz of being on stage speaking to audiences in seminars and conferences and with a directorship of a couple of UK companies, some would have said I was living the dream.

I wasn't a complete slob, was eating relatively healthily, in the gym once a week and did lots of walking with my wife. Followed my medication routine to the word but was quite a lot over weight. I knew what I doing was stressful but hey, thats part of the deal isn't it?

Started to get symptoms of infrequent short term breathlessness about 18 months ago. Sometimes for no apparent reason I would have to stop walking for a couple of minutes until the event passed. Did I go the GP as soon as it started? - of course not, there was no pain and I'd already been fixed.

After a particularly worrying breathlessness event last October that resulted in having to lean against the local butchers window to recover, I went to the GP. Referral to Cardiac Consultant followed (four months wait) and instructed to dial 999 should I have any chest pain.

Ten days later blue lighted to A&E with chest pains. Blood pressure off the scale but fortunately I hadn't actually had a HA.

Got to see my original consultant during my four days on cardiac ward. He was pretty sure that the symptoms I was getting were either blood pressure related or to do with my medication. Very unlikely that there was any further heart disease after just four years. Cardiac CT scan was arranged as a precaution and I was sent home with strong suggestion to lose some weight and with some new meds for the blood pressure.

Had the CT scan a week later with an appointment to see consultant a couple of weeks after that. Two days after the scan I received a call to get back to see my consultant the next day. Turned out I had a severe stenosis in the RCA (which was clear just 4 years ago), a really big and nasty surprise to the consultant and to me. On November 20th, back to the path lab for another stent, the artery was over 90% blocked.

A talk with my consultant about what next, an honest look at my lifestyle with my wife and it was obvious a major review was needed if I was to reduce the chances of an even more serious cardiac event in the future. Nobody actually said I was a fool for not taking the opportunity to change things four years ago, but I certainly felt like one - and I have to admit, really worried this time.

I signed up for the cardiac rehab programme which didn't have any places until the week before Christmas. I cancelled all work commitments and decided my job now was looking after my heart, me and my health. Got into a routine of exercise from day one. Walking for 15 minutes to start and soon working up to an hour every day. First rehab class just before Christmas. Continued with the rehab programme at the gym over Christmas break and walked every day (even out doing 12,000 steps on Christmas day). Started to follow the healthy eating guidelines and gave up alcohol.

I finish stage three of the rehab programme this week. With exercise under supervision I've learned to take things gradually and pace myself. The educational sessions about looking after your heart and health have been really helpful. I keep the rehab books and handouts in clear view at home to remind me I'm not 'fixed' - I have heart disease and its down to me to keep that in mind without it becoming overwhelming. The life long medication will play its part hopefully, the rest I know is down to me.

After the discomfort of the first couple of weeks post procedure, I've had no more symptoms. I'm now 20lbs lighter, running 3-4k on the treadmill and in the gym five times a week. Blood pressure is under control and cholesterol showing signs of improvement. I've cut back business commitments to a day a week after my daughter reminded me that money isn't much use if you're not around to enjoy it.

I'm already feeling so much better, am very positive about the future, feel in control and have more energy than I've had for years. OK, I get the cold feet at night as a side effect of meds but the wooly bed socks give me and my wife a laugh! Many people on the rehab programme have had experiences much worse than me but all report that they have benefitted from doing what we should all have been doing before our heart 'events'.

Stage four of rehab starts next week and have first Slimming World meeting on Wednesday. Determined to get to a healthy weight and next fitness goal is a 5k park run by April.

My wife and I have decided that the future has to be about new adventures and experiences. Once it seemed that it was my work that provided the adventure. I did enjoy it but the lifestyle could have had very serious consequences for me and my family. Golf lessons start in April and I went up in a glider last weekend. We've bought a campervan for weekend breaks and holidays (how far is that away from all those nights in 'posh' hotels!).

I'm lucky, I've been given two warnings. I didn't do anything about it the first time but this time I'm taking personal responsibility. With the help and support of my family, friends and the many great people in the NHS, I'm planning to be around to enjoy life for as long as possible.

A business colleague shared this Snoopy image with me last week - it's my new life motto!

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DWT123
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14 Replies
Sususulio profile image
Sususulio

What an uplifting and encouraging post, well done on such a positive mindset and making the changes which will make a difference. I love reading posts like yours they nudge my own resolve to take better care and to also enjoy life and prioritise better.

The Snoopy image says it all doesn’t it - onwards and keep well

DWT1 profile image
DWT1 in reply toSususulio

Thank you and good luck on your journey!

Allie-d profile image
Allie-d

Very encouraging post. Thank you for sharing with us.

Lxnc profile image
Lxnc

Hiya, your post resonated so much. I too run my own business. One stent last August did the routine then decided I’m fixed so carry on. My work is fairly seasonal and the run up to Christmas was crazily busy as always. Looked back on the whole thing as a bit of an inconvenience but now I can move on. (Aka go back to how things were). I think your post may have just caught me in time. Thank you.

DWT123 profile image
DWT123 in reply toLxnc

Hi! I meet so many people with their own business who are running themselves ragged who know its not good for their health and will 'one day' do something about it. I was one of them myself!

Both of us have been given a big hint (me an even bigger one!). In a low key way and without hopefully boring people, I'm on a mission to spread the word. Introduced a daily fruit box into the company I still do a bit of work for and am trying to spread positive health messages to business owners and the people they work with. It's also good for me as it reminds me that i need to set a good example.

I'm really pleased my story has at least encouraged you to take a step back and review things - good luck!

Voyager1 profile image
Voyager1

I'm so glad that you have finally come to terms with your heart disease, and very impressed at the progress you are making. Its taken me longer to accept that I have to make changes, although I didn't have a second warning (so far!). I've made 2019 my year to finally make myself more fit and well. If I can do half as well as you have I will consider I will have done well. Really liked the Snoopy cartoon, very profound!

DWT123 profile image
DWT123 in reply toVoyager1

Thank you and enjoy 2019 !

Rosei profile image
Rosei

A brilliant post, this must have uplifted many on this forum, including me and I'm 84.

Rosie.

DWT123 profile image
DWT123 in reply toRosei

Thank you!

zxcvvb profile image
zxcvvb

Hi DWT123

Do you have a blog or somewhere I can talk to you please? At first I wondered why you had jumped in with yet another story but found your message so very useful. My brother had a 'warning' and thought he had been 'fixed'. I can't explain things to him and I realise that this is because of our lack of education but you have the education and the business experience. I wish we had more people like you. I wish I had someone like you to talk to.

Ianc2 profile image
Ianc2

Inspirational. Now is your time to get your bucket list out and start looking at the world. Walking in Switzerland and Austria is pretty impressive and the ski lifts do all the donkey work. Great write up - should be pinned up on every surgery door.

.

DWT123 profile image
DWT123 in reply toIanc2

Thank you for your very kind comments. We are planning to take the campervan to Switzerland and Italy in June so thanks for the recommendation!

Ianc2 profile image
Ianc2

Go to lautrerbrunen

Spend 3 days.

Buy 3 day regional train lift pass.

Day 1 . Train to wengen, lift to emporer's path. Admire the Eiger. Walk along contours to Kleiner shiddiger station, Trian back.

Day 2. Walk along valley to underwater falls from the Eiger. Go on to lift at end of valley. Go up to piz Gloria. Pretend to be James bond. Walk back through murren, on to train, then lift back down.

Day 3 train to Kleiner shiddiger station. Pre book the train up through the Eiger to the observatory on the Jungfrau ridge.. very popular so you must book. Wengen and Murren are car free.

magnilink profile image
magnilink

Good Morning

Your post is very helpful and positive, but these meds we all take , with the impression that they halt progression is not quite right as you ,explain from your post . yours went from clear to blocked in 4 years, what I cannot understand is why this is not monitored, I have heard all this about radiation burden, but a low dose X-ray is what women have very 3 years to prevent breast cancers , they do check in the US from what I’ve read, who would take pills without knowing what effect they have, it’s the built up that’s the key

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