Good Guidelines on What to Expect after Mitral Valve Repair

[Batgrrly]

Hello again. I think after a few days I have improved in small ways. I have been keeping track of how much small, wee things I can do. I am looking at my heart monitor on my phone, still trying to find money for one of those smart watches. I have become frustrated mainly with how my at home care was neglected.

We were not sent home with a book or anything to help us navigate what we might expect over these last two weeks. It's been exhausting for my Partner to have to help me with everything. I feel it would have been very good if there had been a brochure with a website reference which explained some of the basics. For example, no one told me not to bend over yet. That really would have been top priority I think.

Yes, I was at one of the top teaching hospitals on the West Coast. You'd think there would have been something.

Is there a really good website that has helped people to understand what is going on post operation?

[Zena166]

Hi Batgrrly. Why not talk to the BHF helpline. You can speak directly with a specialist nurse who will be able to help. Also check out their website which gives details that may help. Glad you’re seeing some improvement. Take care. Zena

[Batgrrly in reply to Zena166]

website name? So I can look up

[Zena166 in reply to Batgrrly]

The BHF website here is the link to mitral valve but has a wealth of other stuff.

bhf.org.uk/informationsuppo...

Their helpline number is on there as well. Take care. Best wishes Zena

[Batgrrly in reply to Zena166]

Thank you, I also found heartvalvevoice.com. Wary of the .com bit. But they speak in plain language so far