Registered Disabled?

Hello if you have Coronary Heart disease is it true you can be registered as disabled?

Many thanks

[MichaelJH Heart Star]

Not unless angina and breathlessness limit your walking to only yards. Previously you have said you have walked a half marathon and a couple of ten miles. On what basis are you disabled?

[Hidden in reply to MichaelJH]

Thank you, im not saying i am, i just read if you have the disease you can be registered, what i have walked before i am no longer able to do. Just wondered that was all so thought i would ask those that may know 😬

[MichaelJH Heart Star in reply to Hidden]

Apologies I jumped to a conclusion. Many of us with CHD can walk reasnoble distances. The Blue Badge is automatic for those on the highest rate disability allowance, registered blind and some other conditions. Others are assessed. In my view this has got quite harsh because of the amount of abuse - you only have to look in a supermarket car park.

For those who do not qualify for a BB if you cannot walk that far you may qualify for a Disabled Persons Bus Pass if you are not of retirement age.

[Hidden in reply to MichaelJH]

Hi Michael,

I have a sister who has severe EDS who can walk some days but is prone to severe dislocations and can be stuck in a wheelchair another day. Disability comes in many forms, not just ability to walk, and is most often invisible. Please resist judging people you see with blue badges who appear well; they’ve already been through humiliating and exhausting assessments. You don’t know their circumstances.

[Zena166]

Hi Sharron it’s changed somewhat now in that you don’t register as disabled but you can be considered to have a disability if you are affected on a day to day basis. So for example if you work you could be considered for having reasonable adjustments to help you maintain your job. However your disability may not warrant disability benefits if that makes sense! So for example when I was working and was diagnosed with a rare neurological condition which caused me extreme fatigue I agreed with occupational health that when I was really tired I would work from home. But in terms of benefits I wouldn’t be entitled to any. Here are a couple of links to disability sites Government site

gov.uk/if-you-become-disabled

Citizens Advice

citizensadvice.org.uk/law-a...

Scope charity.

scope.org.uk/support/disabl...

Hope this clarifies things for you

Best wishes Zena

[Hidden in reply to Zena166]

Ty Zena, sorry for the long delay in responding, i will look into it, thank you for all your help 😬

[Hidden]

Hi sharron. Disability isn’t assessed by condition but by how it affects an individual. There’s different criteria depending on what you’re being considered in light of:

-blue badge

-disability allowance

-disability and equality Acts

The Acts offer a lot of protection in respect of your employment etc. For instance, I am disabled under the definitions of the Acts but not eligible for blue badge or disability allowance.

[Hidden in reply to Hidden]

Thank you The_Bear 😬

[Nanny72]

My disabled granddaughter (congenital heart with only one ventricle) lost her benefits because she can make a cup of tea. Government assessment. They did however (after 4years) move her to a groundfloor flat because she was and still is, incapable of walking upstairs.

[Milkfairy Heart Star]

I have a PIP.

Very hard fought for. Very unfair system that does not assess hidden disabilities in particular pain well.

Those of us with Microvascular or vasospastic angina are covered by the ruling that if any effort causes breathlessness, lightheadness, fatigue and pain. This does not need to happen at the time and can occur later which happens for many. The full description can be found in the Transport Act.

I have to say applying for a PIP was one of the most stressful things I have gone through the Medical assessment nearly landed me up in hospital.

I have a Blue Badge and Freedom Pass. I also have a badge to use on the Tube in London asking people to offer me a sit if needed. I have always been given a seat when I ask.

When the Tube is full I ask a member of staff to help me on the train and get me a seat.

I have had the odd grumpy look. My answer is that not all disabilities are visible and I invite any person to live with my pain for a week.

[bee2]

Hi Sharron, I have been awarded PIP but only standard rate. I have a few different conditions though, Two of them to do with my heart, but all invisible. The assessment is the worst part as it doesn't seem to matter how much medical proof you have it's about how it affects you. They did have to call an ambulance for me at a medical assessment as I had chest pain and my BP was at 220 . On leaving the room on a stretcher the assessor said " you will have to come back as we never finished the interview" It was her choice to call an ambulance. I wanted to continue. So remember if you apply its all about how your condition affects you and the amount of medical evidence you have.

[Yellabelly in reply to bee2]

Omg I could weep for you, it’s so unfair the way “the system “ works. I am fortunate enough that my position could be worse in many ways but the stress I’ve been put through has opened my eyes. It seems that compassion is nowhere to be seen and the people making the decisions are very cold hearted and it upsets me to think of all the people worse off than myself, physically, mentally, financially and without people around them for support. My faith in how the whole world seems to operate has been battered and I know mentally it’s a roller coaster. It’s stories like yours that kick me up the a..e and make look at things more positively in a personal way. I honestly wish you all the best and hope things get better for you and try and remember there are still a lot of kind compassionate people out there, unfortunately not in the right positions, take care Jez x

[bee2 in reply to Yellabelly]

Yes and with heart conditions we are told to avoid stress 😢 Maybe that's part of a sinister masterplan by the Government. X

[Twobells]

There is no official register for disabled people. However, you are covered by the equality act previously called disability discrimination act DDA.

You can claim the Pip benefit, but you need to have a substantial affect on your daily living to qualify,

Hope this helps