Hi all, new to this. I went to the doctors with no symptoms apart from a virus a few weeks back. Was told BP was high and put on Ramipril. Since then I have been fine and went back today and even though feel 100% I was told I have 25% in left hand side and probable Cardiomyopathy.
Everything on line apart from this site says 1-5 years. Im 33 and genuinely terrified. Can anyone tell me that google is evil?
Please don't Google, the info is nearly always outdated, incorrect or just not correct for you. Much better to join support groups such as this group, for better support & info. My husband has heart failure, according to Google he should have died last year instead he looks better than he has done for years & he's had a heart condition for 20 years! I assume the 25% you mentioned is your EF rate. My husbands is 30, you will be amazed what medication can do & how much it can increase your life expectancy. If there's any questions I can help you with, please ask. Take care xx
Also, try website called Pumping Marvellous & their confidential Facebook group. Lots of help & support from people with your condition, all different age groups. Highly recommended xx
Allow me. Google is evil! 😀 Don't use it for medical queries at all. Ask your doctor your questions, or phone the BHF Heart Helpline (0300 330 3311) and speak to one of their nurses. Or ask here. So far I have found that the truth, as told to me by my cardiologist, has always been less scary than what I've read on Google. As the other reply said, Google would have had me dead years ago and I have plenty of life left in me yet! You might find replies to this similar post helpful... healthunlocked.com/bhf/post...
I was diagnosed with heart failure at 31 (now 37) and was very scared and pessimistic at first, but now feeling good, happy and hopeful. Once you get over the shock, get treatment in place and regain some confidence in your body, things will get easier. Good luck! X
Im terrified by the 25%. I had no symptoms. I still feel perfectly healthy now. The thought of going early makes me want to throw up.
What does the 25% refer to? I'm guessing it's your ejection fraction, but then I don't understand why it would refer specifically to the left side as the ejection fraction relates to the pumping efficiency of your heart as a whole, as far as I know. Do you know what the 25% means, or is it just a scary-sounding figure to you? (If it is your ejection fraction, 25% is not as bad as it sounds, since normal EF is nowhere near 100%, more like 50 - 60.) I think you need to arm yourself with a list of questions and make an appointment with your doctor (preferably a cardiologist) to get answers. There's no point in me telling you not to worry, I know, and it's a perfectly natural response, but do try not to assume the worst/believe the nonsense you read on Google. From my own experience, the more I've found out (from reliable sources) the less scared I have been.
There are many factors that affect likely prognosis and a lack of symptoms is one that bodes well, according to my cardiologist. It wasn't symptoms that led to my heart failure being diagnosed either and I think that did make it harder to come to terms with/get my head around (made it a total bolt from the blue) but in the longer term it can only be a good thing.
If you can't get an appointment to discuss things with your doctor soon, please do call the BHF Heart Helpline. Lots of love x
I have commented on here about the incorrect, and sometimes dangerous, information you can get via Dr Google and the general FaceAche populous. One claim going around is someone saying they had open heart surgery, were driving within a week only needing paracetamol for the minor pain. In reality RB&H NHS Trust will inform you there is a initial six week driving ban minimum. Also nobody with that degree of invasive surgery (cutting the breast bone is equivalent to a broken bone) just needs paracetamol. Other important information related specifically to my scenario is incorrect on the Interweb. Please only listen to your cardiac team and NHF nurses.
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