Neurodiverse folks with Personal Budgets or trying to access one ?

[Kimmeka]

Do Say Hello . .

Any Neurodiverse folks out there with Personal Budgets or trying to access one ?

Please share any advice, tips or recommendations of any organisations that have been helpful to you along the way, maybe advocacy, care planning or finally providing support?

As I am feeling very lost and alone with all this and figure I cannot possibly be the only one . . .

I am a 44 AUDHD (late diagnosed obvs) gal living in Walthamstow.

Unbelievably I have managed to secure a Personal Budget but cannot use it right now as I can’t afford the client contribution. Every month since Feb this year the council has paid their contribution into my Direct Payment account and the balance is now £1846.59. It's so frustrating.

In May I asked for advocacy to help me appeal the financial contribution and resubmit my financial assessment and to support me to navigate the system as I am struggling.

If anyone has had a similar experience to me or any advice do share?

[Starlet7]

I am sorry that you are caught in such a frustrating situation, unfortunately I do not have any experience to share or advice to give. All I can I can suggest is to try following up your initial request for an advocate, 5 months is a long time to wait to hear anything. I wish you luck, and keep us posted on your progress.