Bilateral Vestibular Hypofunction: This link... - Ataxia UK

Ataxia UK

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Bilateral Vestibular Hypofunction

wobblybee profile image
6 Replies

This link explains clearly why some of us have Vestibular issues, and what it feels like.

vestibular.org/article/diag...

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wobblybee profile image
wobblybee
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6 Replies
ninotchka profile image
ninotchka

Fascinating article! I read the whole thing and it describes me perfectly! I have NEVER heard this term before. Why I wonder....?

Amynah profile image
Amynah in reply to ninotchka

We don't know because the ataxia doctors have their own research and other agenda when dealing with us patients. I am not a doctor but have been able to see this in my appointments. It's good to be part of this forum, so we can learn and self help with "Google doctor" 😃

Amynah profile image
Amynah

Thanks for keeping us informed of this. I wish the ataxia doctors would consider this in our treatment. I find the doctors specially the physio therapists have a different agenda. Last time you gave me such great ideas but the physiotherapist ignored it ... When will ataxia be taken seriously .... It seems that we have become research guinea pigs ... Sorry about the venting ...

SM25 profile image
SM25

Thanks wobblybee. I’ve never posted before, but this article exactly describes my experience and what is going on in my head! 🤪

wobblybee profile image
wobblybee in reply to SM25

🙂 It’s good to know it was helpful. I can empathise, these symptoms are a daily challenge.

ninotchka profile image
ninotchka

Just emailed my neuro and she replied in her usual know-it-all fashion that Bilateral Vestibular Hypofunction disorders were connected to the cerebellar ataxia. Duh!

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