is possible to stop taking qvar?!?! - Asthma UK communi...

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is possible to stop taking qvar?!?!

seekadvice
seekadvice

hi all,

my son (9yrs) having been using qvar 80mcg 1puff/day for quite 3-4 months. i Tapper down from 1puff/2day and doing fine. now looking to complete stop. i know the label drug said. but I don't want depending on the inhaler for the rest of his life.

anyone from experience that able to stop qvar complete after using awhile?!?! your feedback really appreciate.

14 Replies
oldestnewest

I think the stance of not wanting him to depend on his inhaler all of his life is a dangerous thing to be considering

Let me tell you im 32 and they didn't give steroid inhalers to children when i was born I got becotide when I was about 14 I stopped taking it at about 20 because i didnt need it and didn't want to depend on it a of my life... I got away with it for 7 years and ended up with some unexplained health problems tachycardia,unstoppable coughs, passing out

It transpires the whole time it was asthma behaving abnormally (after quite a barage of tests, some of which are being repeated just now some 3 years later)

As a result I'm now on:

Duoresp spiromax 4 to 8 puffs a day ( can't go any lower than 4 or I end up symptomatic)

Spiriva (2 puffs once a day)

Fexofenadine 180mg 1 to 3 a day

I have regular bursts of prednisolone and the occasional course of antibiotics

The aim of asthma management is to keep the inflammation at bay and which the clenil at 4 puffs must have done and the clenil at 2 puffs is keeping it that way... I wouldn't consider stopping now not if I knew then what I know now (I may have COPD from the untreated inflammation in my airways when I was a kid)

Chip

I would give him what the Dr says to give him. It may well be he’ll ‘grow out’ of his asthma he may not, but 1 puff of Qvar is hardly excessive.

L

i have been reading about "grow out" as he grown older, but when do you know that he "grow out" from it?? and most case that u have to take it for the rest of life. he is starting it not too long from it. i don't want wait too long when the inhaler attach to his depend and that time to late to get off.

or basic this is it have no choice to quit on qvar.

Bobcat_44
Bobcat_44 in reply to seekadvice

The majority of patients will never outgrow their asthma. Asthma is a chronic inflammation, and can lead to permanent airways damage if left untreated, which means asthma will transform into COPD+asthma.

There is no such thing like "inhaler attach to his depend", it's just the nature of this disease. Please read the first reply - it's EXTREMELY dangerous to stop taking steroid inhaler.

You should not take your son off the Qvar without consulting your doctor. Sometimes it is possible to stop taking steroid inhalers, my daughter manages on just Montelukast unless she is unwell and then she moves to a steroid inhaler as well for a time until things are under control. It could be that your son's asthma is very seasonal, so you may he may be able to without a preventer at certain times of year.

However you shouldn't make this decision without consulting your doctor / Asthma Nurse. Keeping young lungs without inflammation is going to do him a lot more favours in the long term. All the the longterm research suggests that low dose steroid inhalers are very safe, and using this all the time is much safer than having to use courses of prednisolone if he gets sick with a bad flare up.

I wish that steroid inhalers had been around when I was a child. I have long term lung damage probably caused uncontrolled asthma when I was child, at least that what my consultant thinks.

R

seekadvice
seekadvice in reply to risabel59

well, I believe most Dr and nurses give advice as drugs label indicate. therefore I want to know from real life advice who has been using and success on getting off qvar.

Hidden
Hidden

If he has seasonal allergies it might be possible to stop taking the preventer in the off season (ie grass pollen you would not need to take the inhaler during winter)

He would need to start again before the allergy season starts up.

This is something you should discuss with a specialist.

Hi, I have thought several times that I don’t need my inhaler, only to find after a couple of months that I really do but it takes a while to get the drugs back in your system.

seekadvice
seekadvice in reply to Gareth57

what do you mean? current, you have to take your inhaler? and why you need to take inhaler after couple months quit?

Gareth57
Gareth57 in reply to seekadvice

I mean that several times I have felt well and not in need of inhalers, but I have been wrong, I felt well because of the inhalers and when I have stopped using them I have been unwell for some time after

Hidden
Hidden in reply to Gareth57

Hi Gareth57

Even if you feel well you still need to take your preventer inhaler as prescribed. Basically, your preventer medicine works away in the background, so you can get on with all the things you want to do without asthma symptoms getting in the way.

If you take your preventer inhaler every day, you’ll be less likely to react to your usual asthma triggers – which means fewer asthma symptoms. It also means you’re less likely to need to use your reliever inhaler.

It might feel like you’re taking medicines unnecessarily, but with asthma it’s so important to keep taking your preventer medicine so you can stay well.

And maybe you’re feeling well because your preventer medicine is working.

Hope that helps,

Dita

Gareth57
Gareth57 in reply to Hidden

Hi Dita,

You have made the point I was trying to make, but done it so much better 😂

Hidden
Hidden

Hi seekadvice

Just to let you know the steroid in the Qvar is something your son produces naturally in the day so it doesn't create a dependency and is designed to be given long term while he's got asthma. We wouldn't advise stopping his inhaler unless your son's doctor has okayed it.

Hope that helps,

Dita

Update: have been a while after started this post, we haven't successfully to stop using qvar maybe due to cold season start it. And follow the most advised from here.

Have anyone was using this as daily prevention from this age (7-9), and did your asthma improve when you grow older???

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