Carrying medication i.e presindolone - Asthma Community ...

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Carrying medication i.e presindolone

elanaoali profile image
13 Replies

I carry my ventolin every where I go of course. However as I had an asthma attack away from home and didn't have my presindolone with me. Why because I think a small part of me is still in denial of not wanting to use it and or because I don't like the side effects. But need to grow up and take better care of myself.

So I am thinking that I need to add prenisolone to my kit. Now I have only what I need for each attack so I planning to carry one dose i, e 40mg. Thoughts please.

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elanaoali profile image
elanaoali
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13 Replies
hb1977 profile image
hb1977

I have emergency steroids and antibiotics too. I don't carry it round day to day but I always make sure I have Salbutamol to hand. If I'm unwell I add a spacer to my bag too. My thinking is that steroids don't work immediately so as long as I start them the day I need to then thats OK. To be fair if I'm unwell and near the point of needing steroids then I'm not usually far too far from home!

If I go away, even for one night I take everything with me.

elanaoali profile image
elanaoali in reply to hb1977

I do carry all my medication on every trip away from home. I was at a training day last monday when my asthma attack happen. If I been sensible I would have gone home after I had had it but I didn't. I already missed several opportunities to do this training for my new job so really want to get it down. The attack happen in the morning before lunch I stayed and to have more ventolin 2 hours later and then went home at 4 pm feeling really grim with my chest feeling more and more sore ( on a 45 minute bus journey). Took them straight away when I got home. Sometimes I think we can be our own worse enemy.

Tugun profile image
Tugun

I used to be fine with just the Ventolin but one day during an extremely bad virus I wasn't sure if I would make it home. I had prednisolone with me and took it. It was the first time I had ever taken it and I noticed an improvement. Apparently prednisolone is absorbed more immediately than Prednisone as Prednisone has to be passed through the liver to be converted to prednisolone. I am much better now but that time where I thought I might not make it home has left its mark and I now constantly carry prednisolone in my bag. I haven't used it since I recovered from that virus but it is always there - just in case and I always ask for prednisolone not the prednisone in case I need a more immediate response. However women who may be pregnant need to consult their doctor.

starveycat profile image
starveycat

When I was first diagnosed I hated the idea reliant on puffers, turning away when I needed a few puffs, then I realised just how brilliant I am ,very modest as well, I am living with and surviving this rotten old breathing malarkey so now I do not turn away if I need a puff in the supermarket so what . We just have to accept we are special people. Good luck and gentle hugs. :-)

Cazt87 profile image
Cazt87 in reply to starveycat

I don't always like taking my inhaler in social settings, it depends where I am. If I am in work I tend to go to the bathroom to take it, I know it's silly, I should be able to sit at my desk and take it!

elanaoali profile image
elanaoali

Thanks for that staveycat. I don't mind using my ventolin in public. It's a bit more noticeable as I use a evochamber. I am just having a rough time due to the steroids which are effecting my mood. It's back to the doctors if necessary tomorrow.

QuietChest profile image
QuietChest

I always one dose of my rescue meds: steroids and antihistamines as I have so many allergies that trigger my asthma too.

healthwish profile image
healthwish

I carry my inhalers and steriods and drink of water with me in a small lunch box in my handbag.they go everywhere with me. U never know when ud need them. Also i carry prescription with all my medications and my energency contact phone numbers.

elanaoali profile image
elanaoali

I carry my ventolin and evochamber, asthma plan and now added the rescue steriods to my stuff. Out now have walked around a bit waiting for my daughter to finish a guiding chocolate workshop locally

Breathing good just a liitle achy. Off to slowly walk back to get her then bus home.

Jokir007 profile image
Jokir007

Although this is s bad time of year for most of us, it's a good time to purchase a cheap funky style makeup bag/wash to accomadate a spacer and inhalers.

We all need not to be embarrassed whilst using these as these are our life line.

i don't want to wish our lives away, but to feel better would be fab, roll on spring....

elanaoali profile image
elanaoali in reply to Jokir007

Birthday season in this house + Christmas that's how we keep up our spirits til April.

M-D-F profile image
M-D-F

I personally don't carry my preds with me at all times, but they are packed in my "going away kit". As for giving me mood swings what is the option!

elanaoali profile image
elanaoali

Not missing the mood swings today feel much more level headed today

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