Anyone got any advice re adrenal crisis??
My daughter has adrenal insufficiency as a result of high dose pred. She was diagnosed 3 yrs ago.
The last week we have done so many things due to it being school holidays. Sadly maddie has struggled to keep up though. She crashes and burns along time before the other children. She even chose not to go to the cinema with the other children as planned yesterday as was too tired and instead led in bed with the iPad..unusual for a 5yr old!!
Today she has complained of being cold. It's been a lovely sunny warm day. Her temp has been 35.7!! She has been wrapped up yet still cold!!
I'm worried as this is what she was like 3 yrs ago when in crisis. Does anyone have experience of adrenal insufficiency and crisis??