Hi guys, for me, like I am sure a lot of you out there too, AUK has been a bit of a lifeline for me. It's helped me to come to terms with how bad it is become, allowed me to talk to others in similar situations, get to know my asthma better and meet some amazing people. Some of these who I can now fortunately say I know in the ""real world"" and not just online.
So I know that there are a lot of people out there who share the same thoughts, feelings and fears as I do.
Many of you (as I know there have been times I have) have felt snubbed, belittled, made to feel as though you are over perceiving symptoms or else just attention seeking. A lot of the time, because a lot of us don't fit into the nice normal tick boxes for asthma and don't do the things that are expected of us on que.
The biggest thing that I have encountered and the thing that has done the most damage to me when it comes to getting help is when doctors turn and at to you that you aren't having an attack, it's anxiety. I find myself battling with what is right and what is easy; it'd be right to go in early, get treated, be on my way - and then I wouldn't have discharges that aren't nice, but that wars with the fact that if I go in and it's not that late and I can talk and physically appear ok then I'm not always taken seriously until it becomes a crisis, for me it seems easier to go later when I don't have to prove myself, when it's clear that I really am very ill.
Another thing thy is frequently said to me is ""doesn't your asthma scare you?"" reply ""no"", ""how can not being able to breathe not be scary?"" Answer ... ""If spend my whole life being scared, what way is that to live your life? In fear!""
So enough waffling. My concern about the campaign, is that by having the word ""terrified"" directly linked to the campaign, is it going to add to the misconception that we are all terrified that we are going to die any second? Will it add to the fear and anxiety stigma that we are all too often subjected to?
Also anxiety and fear is a natural part if life. I'm not saying that it is wrong, I'd be lying if I said I was never anxious etc. And another thing, even if a person did show up in A&E for a panic attack, how are they wasting time etc, asthma or anxiety, either way that person is suffering, aren't they? The only thing that is different is physiologically, so therefore treatment, but why should attitude be different?
I think that awareness should most certainly be raised, too many people do not realise how dangerous it can be (even to ""mild"" asthmatics). I'm the worlds biggest advocate for getting asthmatics to get help early, but the things I've had being said to me have done a lot of damage. I just hope the stigma isn't increased by this!!
Any thoughts anyone? I've just been thinking aloud!