Maddie (4) has adrenal insufficiency allegedly caused by high steroid use. She has been on pred for the last 2 yrs or so and it's been used to control her brittle asthma as well as keep her adrenal problems at bay. She starte on 5mg for her asthma and has now weaned down to 1mg which apparently means its low enough to be able to do a Synachen.
There has been discussions about transfering her to hydrocortisone instead though. The pred has taken its toll on her little body and obviously the hydro will be kinder to her.
Anyway, Thursday is the day for her Synachen test to see what's going on with her adrenals. She's never had one before. Her adrenal insufficiency was diagnosed by a morning cortisol of just 16, instead of 700.
Can anyone tell me the level that is sufficient for her not to need any supplemental hydro?? The consultant wouldn't tell me if he thought she would need hydro or not. He wouldn't even give me a slight idea of the outcome. All he said was that IF she needs hydro then it would be 3-4 times a day and he calculated the dose in advance just in case.
I know if she needs it then that's the best thing for her BUT I just want some idea as to the outcome!! Can she go from a cortisol of just 16 to a near normal cortisol level??
I feel all over the place at the moment with it all and just want answers!! Maddie is tired, weak and breathless. :-(( she hasn't been like this for ages. :-((. Just wish I could see inside her little body an know what is going on!!
Can anyone shed light onto the cortisol levels and required meds??