and much to my (massive) relief, I'm not in respiratory failure, which is what the consultants were concerned about. I do have some sleep apnoea and desaturation but the decision is to hold off on NIV as he thinks it will probably make my situation worse as it appears I am also borderline hypersomniac. I will get followed up by the sleep clinic yearly as its likely that I will need NIV at some point due to the restrictive lung disease caused by severe scoliosis (that's why they thought I may have respiratory failure). Lots of relief in our house tonight, I hope it stays that way for a few years yet..!
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