Can anyone give me some advice? I've had almost permanent oral thrush since last April despite being on oral steroids and nebulised steroids since 2005 and only having the odd issue. Normally it would respond to a course of flucanazole but since last year the only drug which hs worked has been amphoteracin b which has to be given iv in hospital. I live with it until the 'deposits' cause such sickness I'm on anti sickness tablets and injections at home that I end up in A&E needing iv steroids. I'm under NWLC and the specialisist fungal consultant and have been told I have genetic issue meaning I cannot fight fungal infections on my own.
I'm so fed up I either put up with the oral thrush (despite rinsing, using alcohol free mouthwash,and a sugar free pre and probiotic supplement) or have the medication at a dose where the side effects mean I can't go to far rom a bathroom. I've asked about changing my diet and was advised it would probably do more harm and there is no evidence that a wheat and yeast free diet would help. I've tried an inhalor where the steroid is only activated when it reaches the lungs but don't have sufficient strength in my hands to use it. I've tried the 'aids' to help use it but they don't give a constant dose because they weren't designed for this inhalor's manufacturer.
My prednisolone is now at its lowest level, but the feeling of your throat being swollen and having to have a bland easy to swallow diet is stating to get to me. I know its not life threatening but it is life limiting. I can't do my job with an infection like this. The only preparation of amphoteracin available for use at home is lozenges which aren't strong enough.
Does anyone have any other ideas on what I can do to get rid of it or to ease the symptoms? I'm had 4 admissions and numerous A&E visits because of it which seems ironic as its not actually my asthma causing me to go to hospital.