My daughter is 10 years old and being diagnosed with asthma at the age of one. Up unitll she was 6 years she was in out of hospital every week, seeing great consultants at newcastle. Her asthma became more stable, but we left newcastle and went to local hospital.
Since October her asthma has dramatically deteriated, she has missed 9 weeks of school. Her peak flows are dropping to 100 at the worst or vary between 250 and 350 (she normally manages 450 when well) On discussion with her consultant she advised her lung function was always ok. And that she shouldn't missing any school (yet at the first sign of a cough the school send her home, also she up most of the night coughing, wheezing and short of breath). The doctor told her there are children with worse peak flows so why cant she cope? Upon this statement we left and she cried her eyes out adising she wasn't making her asthma up. She has been admitted four times since october and doctors kept her as she was needing nebs less that 4 hourly. We asked to see this doctor but she was always unavailable, even after advsinig mr to take her to the ward to do a lung function, 3 ocassions I did but again she was not available. She then advised the doctors reported to her that my daughter was ok, on that response I asked why did the doctors keep her in? I have been advsinig the doctor we are not coping (myself and daughter) with her poor asthma control, yet she has no suggestions, just very abrupt saying children have worse peak flows than hers. She is getting more depressed as she is missing so much at school and dance activities as she is too wheezy or just doesn't have the energy.
I have asked for her to be referred back to Newcastle doctors, which has been done. Has anybody else experienced this where doctors say they disbelieve the child? It has become so bad that I have had to give up work for the forseable future to look after her? The school are having more training to give her nebs, but what can you do when your child id up all night..
Any advice would be most appreciative In ten years od seeing doctors and consultants I have never experienced this, they have all previously advised she is not normal symptomatic asthmic and brittle with it.