Hi I'm new to the site and have a 14 year old daughter who was diagnosed with brittle asthma when she was 6. This involved the occasional hospital visit when she had a chest infection but was otherwise well managed. Gradually over 12 months or so (probably coinciding with puberty) she has become increasingly symptomatic having been into hospital 5 times this year despite increasing and adding to her meds. Obviously this is a cause of concern to both my daughter and me but when we went to see the consultant he informed us that because my daughters lung function had responded well to oral steroids we shouldn't be too concerned and that she wouldn't always be this symptomatic (it took 4 weeks of oral steroids to get the function back to 100% which suggests all is not well) Despite repeated requests the consultant refuses to refer my daughter to a clinic for 'difficult asthma' or allergy testing and is reluctant to actually do anything. Am I missing something here? My daughter continues to be symptomatic despite taking 8 Steroid tablets a day plus various inhalers yet the consultant keeps telling me we need do no more (he actually suggested I take a step back and let my daughter manage her asthma which surprises me as she is a little tinker for lying about her symptoms in case it gets in the way of her social life!) Anyway sorry to go on just wondered if anyone had any thoughts because we feel we are totally in the dark and unsure what to do?
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