Hello everyone
We (the BLF) are interested in hearing your experiences of using telehealth. So if you have experience of telehealth, being monitored at home, or other services like text reminders, please let us know. We'd like to hear your experiences - good or bad and any other thoughts you have.
Thanks
Mark
What's telehealth?
Yes, do please enlighten us Mark as I've not heard of this telehealth either.
Was a post a wile ago .. Interactive health services ... Like nhs direct website with those avators that see if you need midical help
Not sure 100% tho but did think it was good idea tho
Hope that helps all the best 
hi ye ive just read now on hear,yes this telehealth as been gong in ireland nottingam an a few other towns ,i read on my new gps website this dr ian somethin cant remember last name.as put 120 of thezs montors in ppl ouses hear in oldham as a trial run.its so u take ur blood pressure an the monitor relys it bak to either gp or werever.ther doing it to cut cost an ppl going hozs an such to cut down infectins,ireland have had them a while ppl are happy with them.an the other towns.so why just now oldham only 120 getin trial run with them.god ,bakward this town and why have other areas ad them a while.its really not fair,now government are upin an ahin sayin oh we dont think ther working ,they wat to shut there gobs permanent really.im sik of them.i rung receptionist up 3week ago and asked is my gp giving us telehealth .er reply was eh wat never heard of that wat is it,god,they dont want us to have anything thats all i can say.the mony thevye had of the millions of us over the years with our waged buyin cigs and no warning then.they shoild have a cure for us or stop full stop tobacco sales,but wont caus they need the mony.then have the bare hard face cheek to deny us anything karma is watching them,take care
Thankyou daz for the above info and to everyone else for their comments on telehealth - will go into this over the weekend x
HI Mark....I use the Mymedic, and I find it very good, simple to use and allows me to keep track of things.
I start off with my sats reading followed by blood pressure,temperature and weight.
The readings are then sent vie the machine to the respiratory nurses at their clinic.
there is a automated recording which asks questions such as "have you had any chest tightness since yesterday" etc.
We have had them in Plymouth for a while now but I believe Cornwall started some time before us.
Ivyleaf
Hi, I've never heard of these services but they sound good. Do people buy into these services as individuals, or is it referral process through GP? What is the cost?
Hi Mark
Have been on Telehealth here in Devon for about six months now. I was put on the service as I live in a rural location. I have nothing but praise for the service. Easy to use. It's very reassuring that it's there. If they notice, or I record a change in my condition they phone me within a couple of hours of my recording. The real backup is still the pulmonary team at the hospital, but it's another string to the bow so to speak. I am also able to monitor my own condition better with the daily SPO2 reading. Hope that is of use.
Hi Everyone
Just to clarify on what Telehealth is.
Generally a person is provided with a piece of equipment that enables them to input information about their condition - this information is then monitored, perhaps by a nurse. The nurse may be based at a hospital and monitor a group of people who may live in rural areas. The nurse can then contact anyone who has inputted any info that shows they may be starting with an infection. The nurse may then go to visit that person - or contact the GP to get a prescription ordered etc. This type of service will vary from area to area - not all areas have it - and it is the NHS in that area that sets the service up.
Thanks
Mark
hi mark .ye i have heard f it.its yust i think started up hear in oldham.i read on my gps site theres like 120 ppl just been set up with them/to see how they go.my question is.why then as it been going on in ireland and other towns and we are just hearing of it now.we shoild all be treated the same.we are not numbers we are human beings thank u .ps the mony the past and present governments have made out of us and the tobacco giants.and never a word of copd.i had never ever heard of it.nor mt gp apparently or elz he would not have ignored my xray last yr wat said i had it mild well thanks to hin im moderate now dum.man.ex gp now,
Hi Mark I have used the Telehealth since before Christmas. I think it is a very good way to monitor people with long term conditions and it helps prioritise the patients who need contact or visiting. Should any of my reading show up as being not normal for me I initially get a telephone call. It was put to good use the end of February due to my sats being low for a couple of days the nurse arranged for the doctor to visit and I was off to hospital for 8 days.
Hello Mark
I live in Devon (Nr Barnstaple) and my comments are exactly as Knowledweller's above.
In addition, I feel more relaxed about managing my condition knowing that help is at hand should I need it. Although after 8 years of LTOT I have a pretty good idea when an exacerbation (sorry Flare-Up!) is coming on, there are times when I just feel lonely and vulnerable. Whilst other times I just want to be left alone to get on with it.........
Hi Mark we have it here in Milton Keynes about two hundred on it according to community matron s office. Can only be a good thing I think. because of the daily readings they have more of an idea what is normal for individual people and can ring alarm bells when needed and it gives a sense of being really well looked after. knowing you can ring if them if worried about anything
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