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I have read the info on the conference in leeds on the BLF website. Is there any info where they answer the questions posed?

bridport profile image
7 Replies

I live in Colchester Essex is there anywhere i can get to that is closer to get the information i need. I am constantly reading about gas exchange levels and % of pridicated and results of 6 mintues walk tests but i don't know what it means to them or me and where did they get the info.

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bridport
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Mulie profile image
Mulie

Hi Bridport you I am not sure what the gas exchange level refers to other than in my own situation I am a "retainer" thus retain CO2; it ultimately means that as I exert myself in any way whether jsut walking about the house or even standing up my oxygen saturation drops below 92 and walking slowly upstairs it usually registers 79% until my breathing comes up a bit and my oxygen concentartor kicks in.

It could also be referring to the spirometry results - when you blow into a machine and it registers the out put. The resulta are "predicted" based upon a "norm" collected from a group people of a similar age, weight, and height - as far as I understand it - so please don't quote me as gospel.......................

The 6 min walk test allows your medic/nurse measure your oxygen levels by placing an oxymeter on a finger and seeing if it stays steady or reduces in any way.

Have a chat to the BLF helpline or go along to your nearest Breathe Easy group as I see there is one near Colchester and will probably meet once a month as a support group for people with lung conditions and health professionals do attend as well if available. I think I learned more from fellow sufferers than from my original health care team!!!

Does this help?

Mulie

bridport profile image
bridport in reply toMulie

Yes thank you I will go along to the breatheasy group. I will also ring the helpline.. Thanks your reply is very helpful

Kath

in reply tobridport

Hi Bridport As a regular of Colchester "Breathe Easy" do come to a meeting

and join our cheerful group. We meet every 6 wks on a Fri morning. The next

meeting is this coming Fri, Oct 5th at 10. 30. We hope to have a local Lung

Consultant give a talk. The one after is on Nov.16th, talk by BOC rep.

(The "Elevenses" are worth coming for alone!) You can see where to go on

the "Colchester Breathe Easy " web site, bus stop outside and Tesco nearby

for Lunch perhaps after?

bridport profile image
bridport in reply to

Thanks I'll try to make the one on Friday regards kath

in reply tobridport

Hi, Will look forward to seeing you there. If I haven`t got there

yet,as I travel from Clacton, I have asked Fred to look out

for you. Basinga.

bridport profile image
bridport in reply to

Hi thanks but I won't be able to get there this time. Hope to see you next time regards kath

Hi

Yes - if anyone has any questions about IPF - idiopathic pulmonary fibrosis - please call the Helpline on 03000 030 555.

Thanks

Mark

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