Hi from woodshaper!
No idea at all what to write other than am yet another COPD sufferer.
Mike
Hello from a Newbie: Hi from woodshaper... - Lung Conditions C...
Hello from a Newbie
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woodshaper
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46 Replies
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hi woodshaper, welcome to the site, its nice to meet you, how long have you been a copd sufferer? San x
Hi San about 2 years but I have to admit that up until the last few months I did not give it much thought.
Now I am!
woodshaper.hello & welcome,you will find this site very useful.the folk (fellow sufferers) on here are very helpful.I was diagnosed in april but was told i had been copd for years.its an awful thing to have.thank God for the people on here who help us cope.
Hi pedantic, its a pity I did not find this (and other sites) when I was first diagnosed.
Only now aware of exactly what I've got, wish someone would have told me sooner!
woodshaper
Welcome woodshaper. It seems a lot of us were in the same situation as you. GP's don't seem to know the BLF exists.
Yes, its surprising considering that we now live in the age of Information Technology.
woodshaper
Hi and welcome Val
Good Morning and welcome, have to say this group of fellow COPD pals are really helpful and supportive.
Thanks Marian, its more than I'm getting at home believe me!
woodshaper
Hello woodshaper,I'm glad I found this group as well.The more you learn about copd the better! have a sunshiney day!
Thanks hufferpuffer, nice to hear from so many positive people.
woodshaper
hi woodshaper , i'm a newbie too...frrightening, but good to know there are fellow sufferers willing to share ther highs and lows .
Are you a woodturner/ carver? I trained as a cabinet maker and was hoping to return to woodwork as i retired but not sure now how the sawdust etc will affect me .any thoughts ?
Used to carve Love spoons, letter openers etc, etc and then decorate them using *Pyrography equipment! (*wood burning)
woodshaper
Also made jumps etc for dog training, even went to French Polishing classes for a while
Always wanted to be work with wood (rather than metal) as a lad, really do wish I had now.
woodshaper
I started to use a 'Trend' (the Router company) nose and mouth mask/respirator which is very good but a bit bulky.
They also make full face one, that uses a re chargeable battery
that may be worth a looking at!
woodshaper
why do we all have to be called newbie when we are in the same boat ?
hi Woodshaper, i was diagnosed in march this year, i wasnt aware of this site, i found it by chance when it was advertised on facebook and thought i would come have a look, i was already signed up for health unlocked with the parkinsons site, though i never left any messages on there, this has been a godsend, been coming on more often now, everyone is so supportive as everyone on here either have a lung condition or know someone, so each person knows what the other is going through. San x
Never had much time for those Social sites before, but have been a regular on a Car Forum.
It has a sort of chat room, you know who's on line, topics that have been posted etc.
Maybe that would be a good thing to have?
woodshaper
Hi all, very glad to have found this site, like San, I discovered it through Facebook (hooray for social networks!)
I was diagnosed with COPD 10/15 years ago, use Spiriva, Ventolin and Seretide and am on oxygen 16+ hours a day. It's such a frustrating disease: when I think I brought up 4 kids (more or less single-handedly) and used to do aerobics and weight-training 3 times a week and now I get out-of-breath just walking to the kitchen!! Still, could be worse.
Hugs to all,
Jude x
Four kids, that puts you in the Super Hero League Spritz.
woodshaper
Just one of those things that had to be done! 
hi spritz,i only found and joined this page last week,they wouldnt let me have 1st 5 passwords i chose so i typed in" despondant" lo and behold they let me have that 1, ,lol ,hence the name but i suppose its apt. youre the first person i have felt at a similar stage of copd,but yours is more advanced than mine by 3 years,also im not on oxygen yet and can still take the dog 4 a slow walk couple of times a day,as you say its all so frustrating but it could b worse, thank you 4 letting me break the ice by chatting ,i was begining 2 feel a bit of a lurker by not joining just looking ,bye 4 now jacqui xx
Hi Jacqui. Good choice of username, lol! Although I try not to get too low, it does happen at times.
I've had oxygen at home for about 3 years now - I resisted it for a few years before that, wrongly thinking it was the last step so to speak! It wasn't till I was rushed into hospital with a bad case of pneumonia and they explained that o2 wasn't just for help with breathing and that all the organs need it especially the heart that I agreed to it. So, if anyone is told they should have OaH please take it!!
Know what you mean about 'lurking', lol! Done that on a couple of sites because the conversations didn't make me feel like joining in!
Take care,
Jude x
Many thanks to all of you for replying, I really appreciate it.
Found this site via Google, am glad I did!
GP gave me no info after Diagnosis nor did Hospital, Hmm?
Now two years down the line (was still smoking, not now though!) could not breathe, permanent chest infection, wheezing, fatigue etc, etc.
GP sent me for an Xray then after results showed lung damage I was referred to Respiratory Clinic, went last week after an 11 week wait.
Only NOW have found out exactly what COPD is, has done and what else it may well do to me.
Am taking Symbicort, Spiriva and using Ventolin.
Now waiting a second appointment to see the Consultant on 20th of Sept as I am now getting some dull aching from the damaged Lung.
Having some good days and some not so good ones but still manage to take dog out for short walks!
woodshaper
MDF+Contiplas plus routing me too woodshaper, although I used extraction when edge routing it still gets into the atmosphere.
Nice to meet you glad you got over the addiction too.
Breathe Well mate
Lime wood dust just the same, ultra fine and gets everywhere.
Thanks Davybaby, now I am getting through too many sweets (apparently)
woodshaper
Do not forget that you are not alone.Try joining your local Breathe Easy group,it is free and you will meet lots of friends in the same boat. I did and have never looked back.
Will have a look for a local group, thanks for that.
woodshaper
you are on the same treatment as i am woodshaper. I can sympathise with you spritz, i brought up 3 kids single-handedly, as their dad was virtually never around. I also used to be an air cadet instructor, at the cadet sqn twice a week, away on weekend camps with them, even camping out at end of october in the past. I would put up large tents, be on the go from 6am until midnight all weekend, now, most days, i cant even walk upstairs, i get breathless talking on the phone and i just have mild copd, i am constantly on antibiotics and steroids. Its so hard, thanks to facebook, i found this site and you are all so supportive, will be lost without you all now. San x
Evening everyone, so good to see loads of us chatting, think this group is really good, not much to add at this time of night, on the nebs as always, lol and then to bed and hopefully sleep, catch you all tomorrow maybe.
Has anyone else had any side effects when taking Prednisilone?
woodshaper
Hiya. I don't take preds on a regular basis, just when I need them but they always disturb my sleep! Some people tell me they put on weight when they're taking them because they increase their appetite but I haven't found that. I have found that I bruise more easily, though.
Jude
Seems that different people are affected in different ways.
Were you taking for a long time before your disturbed sleeping started or was it affected right from the beginning?
woodshaper
No, with me it usually starts from the 2nd day of taking and continues for a couple of nights after I finish the course.
I started with rapid heart beat went bright red immediately and stopped taking them after a week took me two days to get back to normal.
woodshaper
mayoclinic.com/health/stero... Hi woodshaper, I've just finished a weeks high dose of preds and had aches and pains the following week but I know if you are on them for a long time you have to be 'weened off'.Hope this site is helpful,hufferexpuffer.
Only took a low dose but my heart rate went into turbo charged mode.
Frightening at the time.
Yes its a brilliant site, learning more all the time!
woodshaper
Thank Stitch, thats my little girl Tara, rehomed from Blue Cross Southampton, I used to be involved in Canine Behaviour in the rescue world.
She was the dog no one wanted after 3 unsuccessful adoptions and a rejection by the MOD, you could say that she is my swan song.
Woodcarving is very rewarding/satisfying, you can get small kits including everything to get you started, all thats needed is time and some peace and quiet.
I started out with a Flexcut kit, just cutting/carving does not produce much dust.
woodshaper
Well done with the rehoming!
Know what you mean about 'ignorance' believe me it gets worse the higher up the tree!
Tara has 'not been dealt the best cards' as the Vet says, I am owner no 4, she was no
longer suitable for re homing due to house soiling problems and *destruction, the last owners *own fault.
Her main illness is called IBD (then undiagnosed) and she has either had or still has just about everything that GSD's can have.Now Hip Dysplasia/and mild Osteoarthritis have slowed her down, you could say we are evenly matched.
Someone has given her a good hiding (possibly with a bucket) and she has been locked in a shed at some time.
Originally kept on a small holding and never socialised properly, unable to lead walk etc, etc etc!
Despite everything she has been through she does not have an aggressive bone in her body and is a credit to her breed.
Will have to write a book telling her story would be a good fund raiser.
*Have taught her to Track human scent and you would be amazed at what she can find traces of in/on peoples pockets even after its not there anymore!
*Tara failed an M.O.D assessment before given to BX???
Will see what I can do about photos.
Cheers
woodshaper
Hi Woodshaper and welcome to the site, i joined last month and have found everyone very helpful, just nice to finally speak with others going through the same, i was diagnosed in 2008, my mum passed away in 2007 from copd and was so busy caring for her and my disabled son i hadnt realised how short of breath i was. good luck and all the best to u xx
Hi junegirl, I know how difficult it is being a carer, looked after an elderly Aunt with Dementia for 8½ years down in south Oxfordshire driving down and back up here regularly.
Yes it is an excellent site, wish I had found it a lot sooner.
Cheers
woodshaper
hi spritz and stitch,thanx 4 ur messages,glad i stopped lurking and joined in, its nice 2 know there is always some1 i can have a chat 2 when i feel the need,as no1 can understand unless they have it and it gets a bit lonely sometimes coping on your own doesnt it .thanx again ,bye 4 now must go ,walkies time xx
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