World Bronchiectasis Day – July 1 st World Bronchiectasis Day is held annually on the first of July. Each year, organizers from around the world coordinate activities to increase awareness for bronchiectasis in hopes of identifying the many undiagnosed patients living with bronchiectasis.
For all us Bronchs out there. xxxxx
My Mother and myself were both delayed diagnosis. Causing much suffering along the way.
Keep spreading the word -Education, treatment, diagnosis, support and of course understanding from our Doctors, family and friends. Take care all. xxxx
Written by
Dottie11
To view profiles and participate in discussions please or .
I’m ok now, well medicated - I also have rheumatoid arthritis so lots of inhalers, fortnightly injection and pills to pop. I had a bit of a scare in March when a chest infection ended up as pneumonia and I was admitted to hospital for 7 weeks, very poorly. I’m fighting fit now.
Thank you Dottie for highlighting bronchiectasis . I was diagnosed recently by chance. I also have copd but I have bronchiectasis on the middle lobes of the right lung, it was only found because the lung was collapsed.
Well said Dottie 😁. The asthma & lung bronchiectasis webinar on 27th June was very informative. The amount of research being done now is immense, and they are very close to finding medication that can properly control it. Onwards and upwards.
An interesting point from the asthma and lung Bronchiectasis webinar is that more people have Bronchiectasis than have multiple sclerosis and yet more of us are aware of this awful illness, including doctors, than they are of Bronchiectasis.
I had a fund raiser in honor of the first World Bronchiectasis Day. This year I was too busy taking tests to become a Respiratory Therapist, but next year I'll definitely do something again.
Do you mind if I ask what they did for you once they did diagnose you? I only ask as I have been recently diagnosed but haven’t seen my doctor since diagnosis and would like to know what might be an appropriate treatment when I see the doctor. It is nice to be prepared and know how others are treated so I can suggest what is working for others if he doesn’t offer what would likely be an appropriate treatment.
My referral /treatment might be slightly different. I have Hypogammaglobulinemia which effects my Immune system . Hence antibiotics to cover both conditions. Re my lungs- There are relievers and preventers re Asthma, pysio therapy for lungs which includes breathing exercises. Group exercise class. lung function tests, sputum testing, and monitoring scans. I see a hospital consultant but my Gp practice also look after me when I have infections. Exercise and learning "the huff" is really is important for us Bronchs. But also learn all you can about the condition as sometimes you will come across people in the medical world who will not have a clue what it is. This site will throw up much more than I write here. This site is where I learnt and still learn so much. Oh and take Carbocisteine to break up the thick mucous and shift off the lungs. I find it very helpful. Good luck. xx
It is so difficult when struggling and not diagnosed. Correct reading of our scans so important. Plus the endless x rays when need a CT. Wishing you well. xx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Bronchiectasis
Bronchiectasis
Bronchiectasis -very confused
Bronchiectasis Diagnosis?
Bronchiectasis 
