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World Bronchiectasis Day

Dottie11 profile image
32 Replies

World Bronchiectasis Day – July 1 st World Bronchiectasis Day is held annually on the first of July. Each year, organizers from around the world coordinate activities to increase awareness for bronchiectasis in hopes of identifying the many undiagnosed patients living with bronchiectasis.

For all us Bronchs out there. xxxxx

My Mother and myself were both delayed diagnosis. Causing much suffering along the way.

Keep spreading the word -Education, treatment, diagnosis, support and of course understanding from our Doctors, family and friends. Take care all. xxxx

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Dottie11 profile image
Dottie11
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32 Replies
Nula2 profile image
Nula2

Well said Dottie, people don't understand about Bronch. Have to say to everyone I meet "No it's not COPD" xxx

Dottie11 profile image
Dottie11 in reply to Nula2

Indeed . Or confused with Bronchitis also. xxx

Nula2 profile image
Nula2 in reply to Dottie11

Yes I've had that too xxxx

Dottie11 profile image
Dottie11 in reply to Nula2

Yes I wonder how many of us have. Maybe if it is another part of developing Bronch. XX

Patk1 profile image
Patk1 in reply to Nula2

Even to drs at times x

Dottie11 profile image
Dottie11 in reply to Patk1

I agree 100%. xx

Nula2 profile image
Nula2 in reply to Patk1

I'm lucky I have a bronch specialist at hospital I discuss anything Bronch related with him, via his secretary . xxxx

Dottie11 profile image
Dottie11 in reply to Nula2

Very pleased to read this. xx

Elaiworthy profile image
Elaiworthy in reply to Nula2

Or they say “ do you mean Bronchitis?”

helenlw7 profile image
helenlw7

I was a late diagnosis - 2012 - I was thought to have had it since I was a young child. I’m seen by my asthma consultant.

Dottie11 profile image
Dottie11 in reply to helenlw7

That is a long time. I hope you are getting good care now. xx

helenlw7 profile image
helenlw7 in reply to Dottie11

I’m ok now, well medicated - I also have rheumatoid arthritis so lots of inhalers, fortnightly injection and pills to pop. I had a bit of a scare in March when a chest infection ended up as pneumonia and I was admitted to hospital for 7 weeks, very poorly. I’m fighting fit now.

Izb1 profile image
Izb1 in reply to helenlw7

Glad to hear you are better now helenw7 x

Dottie11 profile image
Dottie11 in reply to helenlw7

You have a lot going on. Glad you are feeling better now. Its always such a struggle when pneumonia hits. Wishing you a good Summer.xx

helenlw7 profile image
helenlw7 in reply to Dottie11

If only we had summer weather!

Issy22 profile image
Issy22

Thank you Dottie for highlighting bronchiectasis . I was diagnosed recently by chance. I also have copd but I have bronchiectasis on the middle lobes of the right lung, it was only found because the lung was collapsed.

Dottie11 profile image
Dottie11 in reply to Issy22

Glad you were diagnosed. Much easier when we know what is going on.xx

Patk1 profile image
Patk1

Thanku Dottie xx

Dottie11 profile image
Dottie11 in reply to Patk1

Your welcome. Take care. xx

PurpleEllie profile image
PurpleEllie

Well said Dottie 😁. The asthma & lung bronchiectasis webinar on 27th June was very informative. The amount of research being done now is immense, and they are very close to finding medication that can properly control it. Onwards and upwards.

Dottie11 profile image
Dottie11 in reply to PurpleEllie

Excellent. About time . x

Nula2 profile image
Nula2 in reply to PurpleEllie

Brilliant👍🤞🤞xxx

Izb1 profile image
Izb1

Thank you Dottie11 x

Mooka profile image
Mooka

An interesting point from the asthma and lung Bronchiectasis webinar is that more people have Bronchiectasis than have multiple sclerosis and yet more of us are aware of this awful illness, including doctors, than they are of Bronchiectasis.

Dottie11 profile image
Dottie11 in reply to Mooka

Very interesting. Thank you for sharing I will keep this in mind.xx

Alberta56 profile image
Alberta56

Well said Dottie.

Schmu profile image
Schmu

I had a fund raiser in honor of the first World Bronchiectasis Day. This year I was too busy taking tests to become a Respiratory Therapist, but next year I'll definitely do something again.

Group pic
Dottie11 profile image
Dottie11 in reply to Schmu

That is wonderful. Wishing you all the best re test and Respiratory Therapist plans. xx

jackdup profile image
jackdup

Do you mind if I ask what they did for you once they did diagnose you? I only ask as I have been recently diagnosed but haven’t seen my doctor since diagnosis and would like to know what might be an appropriate treatment when I see the doctor. It is nice to be prepared and know how others are treated so I can suggest what is working for others if he doesn’t offer what would likely be an appropriate treatment.

Thank you

Dottie11 profile image
Dottie11 in reply to jackdup

My referral /treatment might be slightly different. I have Hypogammaglobulinemia which effects my Immune system . Hence antibiotics to cover both conditions. Re my lungs- There are relievers and preventers re Asthma, pysio therapy for lungs which includes breathing exercises. Group exercise class. lung function tests, sputum testing, and monitoring scans. I see a hospital consultant but my Gp practice also look after me when I have infections. Exercise and learning "the huff" is really is important for us Bronchs. But also learn all you can about the condition as sometimes you will come across people in the medical world who will not have a clue what it is. This site will throw up much more than I write here. This site is where I learnt and still learn so much. Oh and take Carbocisteine to break up the thick mucous and shift off the lungs. I find it very helpful. Good luck. xx

jackdup profile image
jackdup in reply to Dottie11

Thank you so much. What exactly is the Huff?

Beth1949 profile image
Beth1949

Every year, it has become better known. I too, was missed diagnosed for years.

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