hi all new FB group

[Trevor6]

hi all hope all is well, I started a new FB group today. COPD -Emphysema for like minded people to connect and chat about their experiences to share , living with COPD is like a minefield, and can be difficult for people and their families. Take care please feel free to come over and join. Trevor

[Mopsey1897]

do you not like this group?

[sassy59 in reply to Mopsey1897]

Maybe Trevor will be happy here and on FB. Xx

[Trevor6 in reply to Mopsey1897]

Yes , but I just thought it would also be good to have a relaxed FB group, I really like healthunlocked so I will use and learn from both .

[Danielmystar in reply to Trevor6]

I'm stage 4 and find it's helpfull to be in a few groups the more information the better

[Trevor6 in reply to Danielmystar]

Totally agree, knowing likeminded people can help and comfort

[Trevor6 in reply to Danielmystar]

Yes Daniel am severe stage now

It gets me down sometimes, when I have to depend on my husband, on things I use to do .

[purdeyspringer in reply to Trevor6]

I too am severe, I have portable oxygen, which they are changing for some reason today, hope it's for the better. Also border line for home oxygen scale is 73, I am 75, don't really want home supply as it will restrict me so much you have to be on it 16 hours a day they said.I too rely on my husband don't know what I would do without him, he us 75 tomorrow, thank goodness fit and active. I wish you well.

[Trevor6 in reply to purdeyspringer]

Hello 🙋‍♂️ Purdey

[Danielmystar in reply to Trevor6]

Hi ive joined your group on fbk my name is actually Valerie but val for short im down most the time not doing what I used to do x

[Danielmystar]

I'm on some fbk groups about copd ill see of I can the one started .

[GintyFerguson]

I don't have either condition. There us another online group which is very good called bronchiectasis r us.

[claracola]

Just asked to join!

[Bingo88]

What's the group called please. Is it just COPD- Emphysema. Brian

[Trevor6 in reply to Bingo88]

Yes Brian , good morning 🌅

[Ergendl]

Sorry, not able to find it. All the groups coming up in my search are long established. Can you post the group Facebook web address, please?

You can find the address at the top of the page. For example, my singing group is facebook.com/breathebetters...

Thanks.

[katieoxo60]

That sounds a good idea Trevor, you can make FB a private group where as Healthunlocked is public and worldwide. Going on variuos groups often leads to varied info as not all medics are of the same opinion and members speak from there individual patient experience. As I have been on the lung site since before healthunlocked took over I will remain on one site so I do not get confused in my old age 👍😀

[Trevor6 in reply to katieoxo60]

Hi, Katie, u know your correct, as I did learn to find in other groups persons are from around the world America,etc who all have different views as to us in uk.

[Nickcv]

By far the best group I've found and joined on Facebook is copd UK. With 7,600 members the group is well established and the members and particularly the admins are very knowledgeable and helpful.

[Trevor6 in reply to Nickcv]

Thanks Nick , I was not aware of that , I think it’s good to have a choice , and interesting insights

Trevor

[O2Trees in reply to Nickcv]

Yes there are many copd fb groups already.

[purdeyspringer]

🙋‍♀️ back Trevor6.

[purdeyspringer in reply to purdeyspringer]

Hi 👋 back. I will take a look at your fb group. Interesting.

[primrose71]

how do wee join Trevor please