Feeling sad

[Purple_1963]

Went to see specialist yday at local hospital my lung function is fading in may I was at 58% I'm now at 40% feeling like I not got much longer to live 😭😭😭😭

[CDPO16]

40% is nearly half. I think you'll keep going a long time yet. Get as much exercise as you can, eat healthily and get infections treated promptly. My lung function went from 54 to 39 to 24 and I'm still plodding on.

[Maricopa in reply to CDPO16]

Mine was 20% last January. I’ll be getting my annual PFT soon.

[Purple_1963 in reply to Maricopa]

What's PFT?

[Maricopa in reply to Purple_1963]

Pulmonary Function test. Spirometry.

[Purple_1963 in reply to Maricopa]

I had lft with reverse ability.

[Maricopa in reply to Purple_1963]

I have genetic emphysema due to inherited alpha 1 antitrypson deficiency. It’s very severe now. Stage 4. I have psoriatic arthritis as well. On 19 meds.

[CDPO16 in reply to Maricopa]

In the main they still aren't being done here.

[sassy59]

Hi Purple, have you thought about Pulmonary Rehab? Many of the forum have done really well on it so speak to your GP and get a referral. Hoping you don’t have to wait too long.

Who knows how long you have to live as many live for a long time with lower lung function. Don’t despair and wishing you a merry Christmas and good new year. Xxxx

[Morrison10]

Yes as others have said, keep active as much as possible, eat well. Best wishes x

[Dottie11]

Always remember we tend to go down more in Winter months. Mentally too. Try and do some exercise even when sitting and lying there are things we can do. As Sassy says Pulmonary Rehab very much worth it. Take care. x

[Purple_1963]

I thought with stopping smoking I'd stay at least in high 50s not decline had more mucas and coughing since stopping smoking n felt more ill is it really worth stopping smoking

[Oshgosh in reply to Purple_1963]

yes it is always worth giving up smoking. I gave up 30 years ago struggled for 12 months with infections clothes et cetera. After that I didn’t look back take care

[Annscottie]

Hi Purple. Like others have said Pulmonary Rehab will definitely give you a boost.

I think when you stop smoking the lungs start a clear out! Mine certainly did. Nowadays although my lung function is only 33% I don't have too much mucus and no cough. I was diagnosed 13 years ago.

Best wishes.

[Ern007]

Hi Purple - A while ago mine was 48 - my breathing is worse, but I am still here - Have not a clue my number now. I just keep going. As CDPO16 says, healthy diet and exercise will help, in fact I have been slipping on exercise of late and feel the worse for it. take care,

[Blyth1]

Oh Purple_1963 this was my scenario a couple of weeks ago.Personally I have gone into a bit of overdrive trying to improve my home, and rid it of “dust clutter”

As many have already said 40% is almost half ( I was almost the same drop) Many inspirational people on here are much less. Take care 😘

[B0xermad]

Do what you can to keep well and I'm sure you will be around for a few years yet ,wishing you a better 2024

[Mellywelly]

Please don't let this stop you fighting. I know you get down with these diseases when they take a turn for the worse as I do too. 2 weeks ago I just could not stop crying all day everyday. Have they nothing else you could try to make your breathing even slightly better. 😉 pester them, unfortunately you have to some times. Keep posting chook 👍

[Purple_1963]

Thanks for all your lovely comments means alot xx Wishing you all A very merry Christmas and a happy 2024 xx

[Nicholatracy]

stay strong please 🐞