The Swan Above the Bed.: Tread quietly... - Lung Conditions C...

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The Swan Above the Bed.

52 Replies

Tread quietly when you see it

The swan above the bed

The person that you see in there

Has a difficult path ahead

pat.nhs.uk/patients-and-vis...

52 Replies
Aingeful profile image
Aingeful

I'm in hospital at the moment and saw the Swan Suite today,so sad.x

in reply to Aingeful

That is sad, but at the same time peaceful. Better than seeing the person and not knowing I think.

sassy59 profile image
sassy59 in reply to Aingeful

Thinking of you Aingeful. 💜💕💜

in reply to Aingeful

I hope they have made you comfortable in there Aingeful and you will soon be on the way home. 😘

Aingeful profile image
Aingeful in reply to

So do I! Comfort wise they do their best but the beds could be hired out as instruments of torture!

HungryHufflepuff profile image
HungryHufflepuff in reply to Aingeful

Thinking of you Aingeful 💐

madonbrew profile image
madonbrew in reply to Aingeful

Thinking of you Aingeful! xxx

Alberta56 profile image
Alberta56 in reply to Aingeful

Best wishes, Aingeful. Thinking of you.

garshe profile image
garshe in reply to Aingeful

Hope you will recover soon Sheila and be home again xx sending hugs .🙏💕

sassy59 profile image
sassy59

I’ve not heard of that before Don and find it sad yet somehow the right thing. Thank you for posting that. Xxx💜

in reply to sassy59

They certainly need to be very careful in the use of them. xxx

Izb1 profile image
Izb1 in reply to sassy59

I didnt know either Carole until Don told me on another post, but now I do I shall be mindful when I see it x

sassy59 profile image
sassy59 in reply to Izb1

Yes me too Irene ❤️💜❤️

CDPO16 profile image
CDPO16

I knew nothing of this until this week. Good principles but I don't really care for the chosen image of the swan.

in reply to CDPO16

That was my first thought, but then I thought a swan silently gliding on it's way would be right but the imagine wrong. Incidentally, I'd prefer it flying right instead of left, don't ask me why.

CDPO16 profile image
CDPO16 in reply to

It's personal taste, I just see a swan as being much more graceful and beautiful.

in reply to CDPO16

Oh I see! It’s a bit Art Deco isn’t it. But the word swan doesn’t look much like a swan. 🤷‍♂️

CDPO16 profile image
CDPO16 in reply to

That hadn't occurred to me at all.

Izb1 profile image
Izb1

Now I know what this means Don it brought a tear to my eye x

in reply to Izb1

I didn’t know until David Greenthorn mentioned it in his message about his experience as a hospital volunteer.

Thepainterswife profile image
Thepainterswife

I haven’t heard of this and tbh I , personally, don’t like it . When I worked in a care home people were constantly being put on “the pathway” One lady was on and off it five times ! It seems to me that for some reason people feel the need to come up with new labels for what has been happening since life began and should be an entirely private situation When I or my loved ones are lying on a hospital bed there will be no swan or any other signage telling all and sundry we’re about to peg out ! I totally accept many people will like the idea but sorry not for me ☹️

in reply to Thepainterswife

The Liverpool Pathway was a terrible thing, legalised murder in my opinion. When my wife was in hospital one of the patients was crying out for a drink of water and I was prevented from giving her one. I found later she wasn’t given food either.

Thepainterswife profile image
Thepainterswife in reply to

I heard of that happening though never saw it myself but definitely some of the ideas these unknown “experts “ come up with aren’t great . I can’t help but think some of these new initiatives are just another example of keeping someone in a job . At end of life people should be comfortable, pain free and their privacy and dignity respected what they don’t need is to be labelled

SORRELHIPPO profile image
SORRELHIPPO in reply to Thepainterswife

I am in two minds about this. It may help others to see me in this way, if I am in this state. However I do not want to be treated differently, as in the way people talk to me, and fear that the knowledge might make others change in the way they approach me, horrid.

Cloudancer profile image
Cloudancer in reply to Thepainterswife

Agree they should also be treated as a beautiful unique human being.

Cloudancer profile image
Cloudancer in reply to

I agree with you Don,awful protocol.Love your poem-rather like the swan myself although a picture of a thoroughly disgruntled hissing goose would be apt for me!

in reply to Cloudancer

I’m beginning to see it’s maybe not a good idea after all. I fully intend to die at home in bed and I keep spending more and more time in there to increase my chances. 🤷🏽‍♂️

Cloudancer profile image
Cloudancer in reply to

Bless you Don.How I wish we as a society could have the resources available to enable folk to pass where they choose ,at home if wanted and with full support.

Gentle hugs and best wishes x

watergazer profile image
watergazer in reply to

My dad insisted he was going nowhere and would die at home - and he did He was found sat down at the top of the stairs x

in reply to watergazer

It’s traditional to commiserate in those circumstances but there are occasions when I’m tempted to say ‘Well done!’. x

madonbrew profile image
madonbrew

Thank you Don..it’s useful to know

Alberta56 profile image
Alberta56

Lovely little poem- so simple, so touching. xxx

Alberta56 profile image
Alberta56

There is a wonderful moment at the end of Sibelius's 5th (?) Symphony, which represents wild swans, inspired by the sight of them in flight. Like Mr. S I've always associated swans with flying away to freedom and a new life. Quite see that The Painter's Wife and others will feel differently.

Thepainterswife profile image
Thepainterswife in reply to Alberta56

When I worked in a care home I sat with a dying lady who I was very fond of and had no family , when she passed the manager was informed and he returned from his home ( it was 8pm) to see to her personally. He and I washed her , and dressed her in her nicest clothes ( the first and only time I’ve ever done that) but the first thing he did was open the window he said he always did this to allow the spirit to fly free . I was so moved and I truly believe that at the last breath the spirit does fly . My objection is purely to the physical labelling of someone as a “dying person” they are the same living , breathing human they have always been until the moment ( and it is after all a moment) when they pass , I just don’t think a label is necessary during the time before but if it brings comfort to people and they or relatives are given a choice then that’s fine 😊 xx

I think the thoughts and feelings are probably the same, it’s just the way of expressing them which is different.

1947Mags profile image
1947Mags

Don I've never heard of this but it would have been wonderful when I lost my husband 5 years ago. Thank you so much for sharing. Mags

in reply to 1947Mags

We have Greenthorn to thank for enlightening us.

garshe profile image
garshe

I have never seen or heard about the swan. Brought a tear to my eye xxSheila 😥

Aingeful profile image
Aingeful in reply to garshe

My daughter was in one before she died in May,they are very peaceful and family could visit.

garshe profile image
garshe in reply to Aingeful

Makes me feel very sad Sheila, but I can see how lovely it was you were able to visit. Get well soon xxSheila 💕💕

Thepainterswife profile image
Thepainterswife in reply to Aingeful

I didn’t realise your daughter had died , I’m so sorry for your loss 🥰 My mother in law died in a hospice and I can honestly say it was beautiful, she was surrounded by family and about an hour before she passed she said “I’m ready to go now “ I said “are you Mildred ?” and she said “yes I want to see my mum and dad “ They were the last words she said before closing her eyes and slipping away peacefully 😌

MoyB profile image
MoyB

I guess we all have differing opinions about this, Don and I'm not sure where I stand on it, but it's good to know about and your poem was poignant and respectful, so many thanks for that. xx Moy

in reply to MoyB

It's good that we can discuss it on here without any histrionics. 😊xx

MoyB profile image
MoyB in reply to

I have always had an academic interest in death and dying and did one of my social work placements in our local hospice. Now that I'm getting older it has become a lot more personal. Reading your comment on here about the Liverpool Pathway prompted me to look it up as one of our nephews was put on it, but at the time, we didn't really know what it meant. It seems that it was well intentioned but not universally understood and as a result, it was not well implemented in some hospitals.

I don't know if my family would like to see a swan on my door or above my bed or not. When my brother was coming to the end of his days, I couldn't tell you what was on his door, above his bed or anywhere else as he was my focus, not his surroundings.

It's a long time now since I did my training and so things have changed. However, I always understood that the fundamental difference between a hospice and a hospital was that in the hospice, the focus was to have a 'good death' so that a person died pain free and in peace, close to those they loved whereas, the focus in hospital was to try everything to prolong life, regardless of how intrusive or painful the treatment may be. I think the Liverpool Pathway and those that have followed are intended to offer a palliative option, but if staff don't have the right mindset and training, they may not fully understand the difference in care. Some staff, I may say, are wonderful, and are kindness on legs, but others 'go by the book' and if they've been told a person is no longer having drinks, they will leave it at that and may not think about swabbing their mouth instead.

See, Don - you really got me thinking this through this morning. Well done! I like the fact that, as you said, we can discuss it on here without any histrionics.

👍 xx Moy

Katinka46 profile image
Katinka46

Wonderful short verse that says so much.Thank you Don

Xxx

Walkwalkwalk profile image
Walkwalkwalk

Thank you Don. Your poem is beautiful. Grace

Yousaok profile image
Yousaok

Sorry but have no idea what this means if it's good news or bad

Patk1 profile image
Patk1

I'd no idea about this.thanku Don x

Burbagegran profile image
Burbagegran

Thanks Don,I'd not heard of this, it's nice symbolism for something that comes to us all.

Have a safe and happy Christmas and all the best for next year.

Love

Joan xxx

in reply to Burbagegran

Thank you Joan, we don't see enough of you on here. I hope you have a save and happy Christmas too. Do keep in touch. Don & Puss xx

Burbagegran profile image
Burbagegran in reply to

That's very sweet of you , Don. I don't get on as much as I'd like to, I'm so very tired most days. Its always good to see your input and I thank you for it.All the best

Joan xxx

HollyBoyd profile image
HollyBoyd

Thank you, it's so true and a very moving poem, Don. I trust you get your wish xxx ❤️

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