IPF

[Goto4]

Diagnosed with IPF in Nov 2016. I find that Potters lozenges ( Green pack ) are helpful. Have had 4 breathing tests now.

Not on any other medication yet. I run 3 times a week, always have, but need to stop occasionally for a breathe.

I am trying NAC capsules again, Solgar brand, the prescription brands had to many side affects on my running.

Goto4

[Biofreak]

Sounds like you are doing extremely well considering your diagnosis. Well done. Do you have regular review with your respiratory team?

[Biofreak in reply to Biofreak]

Sorry you've already said you've had regular tests.

[skischool]

Amazing,after reading your profile and 5 years after a diagnosis of IPF and at the age of 80 you are running for 20mins 3 times a week i had to have a little lay down.The breathing tests can be quite stressfull on lungs and also our lung function declines quite naturally over time and maybe that is a factor in your observed deterioration.

I would worry not one iota and continue with your healthy lifestyle and of course those lozenges which obviously have magical qualities.

Best wishes a rather envious Ski's and Scruffy.

🙃😺

[Bkin]

Oh wow you are doing exceedingly well with IPF, running and no medications.

I do agree with you though Potters lozenges (green pack) work well, pity about the taste though :D.

Keep up the good work all the best for your future Breathing Easy.

BK

[frogsonapond]

I am impressed! May I ask if you have had the vaccines and/or the flu vaccine? I too endorse Potters cough lozenges and wish they would bring back their liquid Vegetable Cough Remover.

[watergazer in reply to frogsonapond]

Oh my I wish they would bring it back too. Disgusting stuff but worked a treat x

[Aingeful]

Wow,running 3 times a week? I was diagnosed with IPF in 2018. I get breathless just walking from the kitchen to the bathroom!!

[watergazer]

I think you’re doing well and May it continue

[HungryHufflepuff]

Hello and welcome 😊