Exertional Desaturation in COPD - Lung Conditions C...

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Exertional Desaturation in COPD

Annieosb profile image
10 Replies

I have COPD and in the last 6 months have been very breathless. I desaturate at the most basic things. I have had a scan and bronchoscopy, the broncoscopy revealed haemophilim influenza, given 10 days antibiotics which did nothing. Have had home Alice sleep test and waiting to see consultant in june. Anyone familiar with this?

Thanks

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Annieosb profile image
Annieosb
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10 Replies
Dedalus profile image
Dedalus

Not familiar with haemophilim influenza, but I do desaturate quickly more and more. Can you please update re what consultant says this month. Thank you.

Annieosb profile image
Annieosb in reply toDedalus

Yes I will. Haemophilium Influenza is what kids were given the vaccine for menangitis.

Dedalus profile image
Dedalus in reply toAnnieosb

Thank you. All best wishes for your appointment with the consultant.

Keep-positive profile image
Keep-positive

Hi, I frequently have haemophilus influenzae but I'm also unaware of haemophilim influenzae, hope you get medication which will help you Good luck

Annieosb profile image
Annieosb in reply toKeep-positive

Yes it is haemophilus, sorry. Medication is not helping, Due to see consultant, just wonder if this is coming to the last lap.

Keep-positive profile image
Keep-positive in reply toAnnieosb

Hope you are feeling better soon Annie x

Annieosb profile image
Annieosb in reply toKeep-positive

Well, think it is the beginning of the end TBH, but thanks

judg69 profile image
judg69

My take is that 1) you have COPD which is likely worsening over time , 2) you may have had one or more exacerbations, and 3) you need to see a respiratory specialist/pulmonologist. Best Wishes, judg69

hallentine47 profile image
hallentine47

I have severe COPD Emphysema and heart failure and 5 years ago I contracted haemophilus influenza which led to viral pneumonia and respiratory failure and 19 days ICU ventilator. Since then bacterial pneumonia and heart attacks, strokes and gall bladder attacks and prostrate cancer misdiagnosed, Its all fun when we get older!! Seriously I also suffer what you describe and currently under going lots of tests but no clear answer. It is very debilitating. Keep us posted i you have any success or clarity.

Alberta56 profile image
Alberta56

I have bronchiectasis and have had a couple of haemophilus outbreaks. The only thing which seemed to clear the nasty little blighters was Co-Amoxiclav. Good luck I hope they soon find a treatment which works for you.

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