Advice please : I am having truoble... - Lung Conditions C...

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Advice please

Chr22far profile image
12 Replies

I am having truoble with, my oxygen machine, its so noisy , my Hubby insisted that its either kept downstairs or in the , spair bedroom, either way its difficult for me to adjust the settings 4 for sleep and 7 to 10 for exertion, for example, go to the toilet, or having a cup of coffee, i am tired of the constant moning has anyone else got this problem, or has solved it.

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Chr22far profile image
Chr22far
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12 Replies
Damon1864 profile image
Damon1864Volunteer

I know what you mean mine can be really noisy. Have a good day and stay safe 😊 Bernadette xx 🌈

mikeadams51 profile image
mikeadams51

I have two machines. One downstairs set to 6 and one upstairs set at 1 which I keep in a spare room with the door shut as they are noisy. If I need to go to the bathroom I use a oxygen cylinder. A bit of a palaver but keeps the noise to a minimum. Hope this helps

Chr22far profile image
Chr22far in reply to mikeadams51

Thanks for the info, i have just had a 2nd machine delivered, got have equal levels so for 10, 55,from each but got to get up to alter it, so still to ask for help.

mikeadams51 profile image
mikeadams51 in reply to Chr22far

Being on oxygen 24/7 is a real pain in the backside. I don’t know your level of fitness but if you can swap over to an O2 cylinder if you have to move about during the night. My wife is a very light sleeper so I have to be careful ho much noise I make because she works nights three nights a week. Failing that get your husband some ear muffs to deaden the sound.

P.S. I stand my machines on two off cuts of carpet to minimise the vibration or you can buy anti vibration pads that you stand washing machines on. Hope this is of help

Chr22far profile image
Chr22far in reply to mikeadams51

Thankyou for your reply, its more than emuffs he needs, i have got to the point of dreding to ask for anything. I cannot carry the oxygen cylinders they are two heavy, so i have to ask for one to be filled Because they too difficult for me to pick up and fill at the same time, its less of an argument to not ask, he has very little patience with me, and its part of the greaving process, i. Also have bowel cancer and have had radiotherapy and chemotherapy, thevy coukd not operate because of the lung fibrosis, so the last 12 months have drained him.

mikeadams51 profile image
mikeadams51 in reply to Chr22far

I bet. Hard on both of you no doubt. As well as liquid oxygen which I have to refill I also have lighter cylinders that I don’t refill. Explain all your issues to your oxygen supplier and they will help you as much as they can. Unfortunately there are no oxygen concentrators out there with remote control adjustments. Hope you find a resolution soon

in reply to Chr22far

Have you mentioned this problem to your medics? As I'm sure you realise your problem isn't noisy machines, it's an unreasonable husband. If you are right about it being part of the 'greaving process' caused by your illness, the medics probably have counselling available to help. You need some intervention. I'm sure there's other folk here who, like me, would like to come and box his ears.

Chr22far profile image
Chr22far in reply to

Yes your right, but he is, not able to handle the fact that, i carnt do the things that i have always been able to do, and i am very anxious, but sir, according to him, its me that needs counselling, its me thats demanding and its me that caused us to move to the north east away from family and friends to get fresh air, and now he is in this lock down, its my fault, because if he was on his own he could at least go for a walk. So we are both trapped.

in reply to Chr22far

Counselling would involve you both, not just one, with an aim to get you to understand each other’s point of view, similar to marriage guidance. You are causing each other harm which I’m sure neither of you want. It’s all a part of the serious health problems that you are suffering from and I’m sure your medical people will be able to arrange help for you. Tell them, your health is being affected by this.

Chr22far profile image
Chr22far in reply to

Thanks will do, we do need to take care each other. 😊

in reply to Chr22far

You really do, I'm sure you love each other and although I'm a complete stranger to you both, I can see that you both very have good points to make. Neither of you deserve to be in the position you now find yourselves and neither of you are at fault. It's just like the youngsters say these days 'Shit happens'. 🤷‍♂️x

I stand mine on a rubber mat. It is noisy but it helps a bit!

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