I'm in a similar position to you - mild bronch and asthma, and CT evidence of NTM. The NTM was investigated but they couldn't work out which precise one I had so, as it wasn't causing me any symptoms, we decided to leave treatment aside. The treatment is pretty unpleasant apparently. That was 18 months ago, but now I'm starting to have low grade fever. I'm waiting for the results of a routine CT scan and then I'm going to phone the Infectious Diseases team and ask to be seen again. I get short of breath and tired, and now I'm often running a mild temperature. My chest doesn't feel great, but I've got used to that.
I’m very sorry to hear you have Bronchiectasis, Asthma, Pneumothorax, and NTM, which I had to Google as I’d not heard of it before..
I have Bronchiectasis and Asthma, and consultant always puts me onto Azithromycin three times a week, from late October to mid April, as we are all more susceptible to infection during those cold, damp winter months; along with having compromised immune systems.
I have always found that Azithromycin works well for me.
However, if my sputum test shows that I have a return of the dreaded pseudomonas, then my consultant will take me off Azithromycin and put me onto Promixin, which I inhale with a saline solution through my Philips’ iNeb inhaler twice a day. This is only until my sputum is clear again,
Hope this helps but I’d give the BFL nurses a call as they are really clued up.
I've got ntm too, i think I've got everything. The trouble is the treatment is two years on a couple of antobiotics, which may well not work. I don't fancy two years on antibiotics
I was told over 8 yrs ago i had nodules and they didnt know what they were. Never heard of ntm?! I had repeat cts for 1 year to see if they grew ( at the time they hadnt) but then was discharged after consultant saying they havent grown so nothing to worry about! He said i could have a lung biopsy but didnt recommend it as its painful.
No follow up nothing since.
I struggle sometimes with painful lungs and sweating and feeling breathless.
I have COPD which is not severe but this last year have struggled more.
Should i ask for referral back to respitorary clinic and ask about the NTM?
I havent had a CT scan in last 9 or so years!
Interesting that it comes up here about what the nodules are!! He said i had multiple small ones, who knows if they affect ones health and how!!
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