Help with cramps

[LemonandLime123]

Hi all any advice please I have recently started on Trimbow preventer and now have terrible cramps which I have been told is a side effect of one of the drugs in it anyone else suffering from this and any tips to stop them x

[2greys]

I used to get leg cramp waking me up most nights, the pain so intense it prevented me getting out of bed to try to walk it off even. Not so bad, or often now, since eating a a daily banana, making sure I remain hydrated and drinking tonic water in the evenings, make sure it is not the cheap tonic water that has flavourings only, you need the one containing quinnine.

[LemonandLime123 in reply to 2greys]

Thanks for your reply will give it a try fingers crossed

[skischool]

Hi i take one tablet of quinine sulphate 300mg nightly which have eliminated what were nightly leg cramps to great effect but be advised their usage is being restricted as some research has indicated possible onset of AF with people with a suspected heart condition.

[2greys in reply to skischool]

I did get them prescribed, but they got stopped after 1 month, but I do have both Arrhythmia and Cardio Arterial Disease so I suppose the GP was being cautious, but there is more than one way to skin a cat, no offense intended to Scruffy.

[skischool in reply to 2greys]

I don't agree with their efficiency findings but enclosed within the article is a direct reference to possible heart issues,i believe the Americans have now even withdrawn them completely.

gov.uk/drug-safety-update/q...

[LemonandLime123 in reply to skischool]

Have asked doctor about quinine tablets but they will not prescribe as can cause heart failure but thanks

[skischool in reply to LemonandLime123]

Bit of a generalisation by your GP but like most things that have an element of doubt or concern i imagined that would be their attitude but more useful feedback from them would have seen them giving you an alternative.

[Maximonkey in reply to LemonandLime123]

Hi LemonandLime123, taking quinine tablets made me feel sick, but the doc told me to drink tonic water containing quinine. I already eat two bananas per day but I try and drink a large glass of tonic every day. Don't buy the expensive stuff, just check the bottle for quinine, I buy my from one of the cheaper supermarkets, it works just fine. Take care Maximonkey

[Damon1864 Volunteer]

Hi I m on Trimbow and suffer with cramps I drink tonic water and it helps. Have a good day and take care of yourself 😊 Bernadette xx

[LemonandLime123 in reply to Damon1864]

Thank you will try

[pepapod]

I take a magnesium and a potassium citrate supplement and they help me.I get all over cramps, big muscles and small muscles. Very painful and annoying, happens constantly through the day and night. I know it is the inhalers because if I don’t take the inhaler for even one day, no cramps. Only one brand that I got via samples from my GP didn’t produce the cramping and my insurance does not cover it (I’m in the US). So once those samples ran out, back on cramp inducing meds I went and back to the supplements.

[pegbl]

I to suffered with cramps and found out mangnesium citrate worked for me and also helped my splitting nails. I don't take the 3a day just one in the evening after my meal I found was enough. Xxx

[Comino2 in reply to pegbl]

Yes I take those too,but be carefull if you are put on antibiotics as they need to be at least 2 hours apart at bedtime as one can cancel out the other.I have just found that out today from the doctor xx

[pegbl in reply to Comino2]

I didn't know that, thanks for the info 👍 Will keep that in mind Xxx

[Pinkwalker]

My cramps are horrendous especially at night. I am on Fostair 100/6 and was changed to seratide but the cramps got even worse , in fact every time I moved. I changed back to the Fostair but it is not great and also has an effect on my teeth and gums. The things we put up with!

[Albertdog in reply to Pinkwalker]

I had same problem with Fostair - terrible cramps at night - nurse changed me to Braltus - seems to work better but taking only once a day not sure that it lasts 24hrs - anyway no more cramps ....

[Pinkwalker in reply to Albertdog]

Will mention braitus in my follow up at royal brompton in January. Is it a dry powder though because I don't get on with dry powder inhalers?

[Albertdog in reply to Pinkwalker]

Sorry - but yes it is a dry powder. I don't seem to suffer any noticeable side effects- but it seems to work as well for me as Fostair did. But at 83 my body does all sorts of funny things which i have learned to put up with ...hey ho....

[Pinkwalker in reply to Albertdog]

Shame it is a dry powder, but thanks for your rrply

[Kristicats in reply to Pinkwalker]

I also get terrible leg and foot cramp and very sensitive gums . Have tried tonic water, bananas all sorts. Much worse after an 8 hour shift on my feet.!!!

[Bailey76]

I too am suffering taking Trimbow. Think it makes my shortness of breath worse and it certainly doesn’t “hold” symptoms all day til next dose. Yet again I’m on steroids😡. I keep getting told to persevere. I have pernicious anemia and celiac and they tell me I’m really sensitive to the ingredients in it . Have consulted gp, pharmacist and now respiratory team. They’re ringing back today so I might get some help 🤞

[lKeith]

LemonandLime123

Hi, Where do these cramps usually appear, do they come without warning?

IKeith

[LemonandLime123 in reply to lKeith]

Hi there my cramps are mainly across shoulder blades and in my chest also soles of my feet and I usually get a bit of discomfort before the cramp hits

[lKeith in reply to lKeith]

Hi, thanks for your response,

The areas that you are having these cramps sounds like a full bath of hot water or a warm towel over the areas straight to the skin. It is involves no medical involvement and can be done at your own convenience.

My cramps are limited at the moment to the hands but are extremely painful, a warm towel or even a hot water bottle helps. The cramps can go within minutes of this application, It's only awkward when out and about. keep those parts wrapped up. It could be the heat or the wool or even both. At least you have a little time to prepare, mine come on in an instant.

Good luck, I know this works, please give it a try.

IKeith

[pete45]

STOP TAKING THE INHALER. Your body is telling you something, STOP. There are many other alternatives out there. This is kind of like taking a BLACKBOX drug, it is damaging your body and trying to mask it is not worth.......

[Dedalus]

Phos8 tablets (1 as needed) are fast-working and great for leg cramps.