Anybody here like me??

I am a bronchiectesis patient.

Im new in this community.

I don't know anybody like me around my area.Thats why i searched in internet and fortunately find this group.It will be a relief for me if i can express my feelings here.You guys know how difficult for patient like us to communicate in normal social life.I feel shame for my myself in practical life.

Normal people don't like me,they avoid me.I hate normal people.I don't know how can i make u understand that.plz somebody tell me how can i be a part of your community,how can i get touched with people like me.

[Katinka46]

There are many members here with bronchiectasis. And because it is often misunderstood by doctors most of them are very well informed. If you would like to can you tell us a little more of your story?

K

[Hidden in reply to Katinka46]

Im 25 years old.I found myself as a patient of it at the age of 15.My doctor said my left lungs is almost 70% damaged.My lungs percentage is 27%.

i have also severe scoliosis on my spine that affecting my left lung continueously.

Im facing constant coughing,frequent .infection.In every month i need to take antibiotics.I find my life so difficult with constant coughing and releasing.

I am so frustrated.

[wheezyof]

Hello Abidul,

Welcome to the group.

I have bronchiectasis (and another lung disease, bronchiolitis obliterans).

Almost all of us with a lung condition go through problems in our social life at some time in our life.

There's our own vulnerability, having to avoid people with coughs, colds and flu. There's the fact that many other people cannot understand our coughing, tiredness, breathlessness, wheezing etc.

Of course some of the people shying away from us could be others who have underlying health issues and are worrying about our coughs!

I live in the UK. Here we have support groups, called Breathe Easy, run by the British Lung Foundation. Are there any support groups for people with illness, disability where you live? Maybe a church/religious group run something. It would help you to meet people who understand some of your problems.

Wishing you luck x

[hypercat54]

Hi Abidul you are already a part of our great community by joining as a member. It's good to meet you.

There are quite a few bronchi members so I am sure some of them will be along very soon to help. Do you have a consultant at your local hospital? If not then you need to insist on being referred for more help. x

[cofdrop-UK]

Hello Abidul and a very warm welcome - you are already part of our BLF family.

I have had lifelong bronchiectasis and later in life asthma and other health issues.

I live in the UK and therefore have very little knowledge of how your health system works. I hope you will be able to help me to understand, as it’s difficult to give advice when medical systems work differently.

I assume you have had a ct scan to get a diagnosis of bronchiectasis and I would hope you have a specialist if the field of bronchiectasis. I hope also that you have been taught and do on a daily basis your own lung clearance. I will put up a link for you which shows videos of lung clearance methods and much general and sometimes in depth information.

It saddens me that you do not consider yourself as ‘normal’, but then I don’t know to what extent you experience hostility from the normally fit and well. We all know that people generally haven’t got a clue what we have to deal with, but I get the impression that for you you are feeling it deeply.

Please keep in touch with us and ask any questions as there are quite a few people on here with the same condition as you who would be happy to help.

europeanlunginfo.org/bronch...

Love cx

[Hidden]

Hello Abidul, I'd like to add my welcome to our very happy family of Bronchs. Many of our lovely family have more expertize than the doctors and if you have any questions to ask, they will be very happy to help you. I listen to everything they tell me.

[Izb1]

Hello and welcome to the site Abidul. Its seems to take a long time to get over an exacerbation when you have bronchiectasis and takes alot of effort to get back to some kind of a normal place. We have a wealth of knowledge on this site from members who have tried and tested alot of different methods. Use the search button on bronchiectasis and read up some of the posts, it will give you a good idea on supplements, diet, mucus clearance etc x

[Jaybird19]

Hello Abdul i am relatively new to this forum and I am so glad I have found it. All are welcoming and friendly, and have a wonderful sense of humour and humour is definitely the best medicine.

Take care

[wheezybronch]

I wonder if you have been referred to a respiratory specialist ? I attend Royal Papworth Hospital and have had very good treatment. You need a clear diagnosis and an efficient treatment plan, I have and am very much better than I was. If you have your scoliosis treated it could ease the pressure on your lung. Good luck with everything and just keep asking the questions, I am sure that someone will be able to help you.