Cellular lung treatment

[Chicagorda]

Thought members might be interested in this link thelunghealthinstitute.com/...

I had saved it a while ago and now on reading through what is on offer, it seems like such a simple and possibly effective way of improving lung health. Be interested if anyone has researched it before.

I am still recovering from an exacerbation which has left me very weak. Still hurts to breathe. Chest wall very painful on deep inhalation. Doctor not sure whether it is pleurisy, but antibiotics seem to be working. As it was not my doctor this time (same day appointment - miracle) I managed to get a referral but she refused to discuss choice or finding a specific bronchiecstasis specialist. She said I am not bad enough to need that (?) and I could discuss with the specialist she has referred me to. I forgot to ask for a name, but suspect there is not one and I have just got a general referral to the pulmonary department at the local hospital. It could take up to 12 weeks, of course, by which time I will have seen my lovely specialist in France for the follow up on last year when I was so ill. His take on my condition (bronchiecstasis) is that it is, thankfully, mild at present and he was more concerned that I treat the asthma which was the cause of my long illness last summer.

It was him who gave me the new medications Incruse and Relvar which seem to have kept me breathing relatively easily. He also tested for allergies and it appears the dreaded house dust mite is my worst enemy with all that involves...he is a pulmonologist - which is a general chest specialist, so not specialising in bronchiecstasis, but was able to give an opinion on the MRI scan I had. I have far more confidence in this man, so far, than from the medical profession here in uk. Each doctor I have seen at my practice has treated me as if I am a time waster - you know the feeling “you’ve managed to walk in here and you appear to be generally ok so what’s your question” which then makes me feel guilty for wasting their time. I also believe they are ‘ageist’ And we all know how that feels....The doctor yesterday, after doing rudimentary examination, actually asked ‘ so what are you here for - the antibiotics seem to be working”. I told her that I had had to see an out of hours doctor at the weekend because my gp had refused to give me emergency antibiotics which was exactly what I needed that Sunday and that I was told to see my go if I was concerned. I had been unable to go outside for 5 days and still had chest pain so thought it prudent to see someone before the next weekend and another possible crisis. I also said I would like to see a bronchiecstasis specialist - I named the person and the hospital I would like. See above for her response.

The only person with any empathy that I have ever come across at my practice was a newly qualified doctor doing his internship who did not look at the computer screen but sat in front of me and with eye contact, listened. He found out more about me and was able to assess my condition not just from words, but from my body language and posture. How many doctors have left this most basic of skills behind in the race to transcribe every word on the screen?

Sorry to go on. The phrase “don’t get me started” springs to mind! Have a good day....

[stone-UK]

Hi

Seems so like lunginstitute.com

Same clinic locations, probably same outcome expensive with no guarantees.

Doesn’t help when stage five uses the word may

Quote

The concentrated cells are caught in the Pulmonary Trap™ where they may begin to promote healing in the lungs.

And what is the pulmonary trap, first organ part that as a trade mark

[2greys in reply to stone-UK]

I have to totally agree with you. "May", is not a guarantee. If this actually worked then I am quite sure that it would be offered as a treatment in mainstream hospitals.

[Putsywillow1 in reply to 2greys]

I agree with both of you. I’ve contacted them regarding stem cell therapy via their website- bottom line there are no guarantees. I also inquired if they were involved in any lung-related studies that needed volunteers & the reply was that they were not which indicates to me that this is not a serious foundation but rather strictly out to make a buck. We have little choice but to stick with the legitimate medical profession & look forward to reliable breakthroughs in the future. That being said, I’m getting off my soapbox & wishing you both a lovely weekend! Thank you.

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You don’t need me to repeat all of the ‘GPs and General respiratory consultants know nothing about bronchiectasis stuff’ The way that your GP is treating you is proof of that.

You need and are entitled to a bronch specialist. In refusing to send you to one your GP is failing in her duty of care towards you. The guidelines state that you should have an emergency pack of antibiotics to keep at home to be taken as soon as an exacerbation starts up. This is two weeks of an antibiotic chosen by the consultant in a high dose. It should be replaced when you have used it.

Look for a bronch expert in your area and take it to your GP. Insist on a referral. If she refuses go to the reception and insist on speaking to the practice manager. Very calmly but in a voice that the patients can hear tell them that you wish to start the complaints process because your GP is not managing your bronch prooerly and is refusing to send you to a specialist who can. This usually concentrates the minds.

Good luck. We really do have to be very pro active in our own interests and vociferous in sourcing the right treatment.

[Hidden]

I know somebody who has spent thousands having this treatment in the US. No effect