COPD for Carer's

Hi Guys

Having done much research with the help of my IT geek son I have been unable to find anything available to help explain our situation to people who are tasked with caring for us. He has convinced me that we need to do it ourselves as we are the only people who truly know how we feel and what help we need. I think that we have to do this. He has promised that he will print it and spread the word over the Internet. I will write my stuff down but I would really appreciate everyone's input. Are you up for changing the world as we know it. Please send your thoughts feelings and suggestions to me.

Let's make a difference. 🤔

edited to remove email address - please use personal messaging to share private information.

[Damon1864 Volunteer]

I'm up for it, will email a few suggestions through later. 😊 Bernadette xx

[Hidden in reply to Damon1864]

Thanks Bernadette

It's going to take a while but if we all stick together we may actually educate the world. Looks like COPD is becoming more prevelent so I truly think that it is our duty to try our best to help future sufferers to be understood and able to get the best care.

Love Patsy

X

[knitter]

Just one difficulty, I don't think Health Unlocked recommend direct email addresses on their public site....only in private messages .

You may have to change that part.

[Katinka46]

Knitter is right. Best to ask people to contact you by private message on this site and then exchange email addresses. A bit cumbersome but safer. That is how I sent people the account I wrote about my medical saga.

K

[Bella395]

I have been a carer for someone with asthma/bronchiectasis and other problems for a long time. It is difficult and stressful. TBH I wouldn't know where to start in giving useful advice to other people but well done for trying to help carers.

[Whitechinchilla]

That’s a wonderful sentiment. I will be very interested to read the replies.

I don’t know if more people are being diagnosed with it or is there now more publicity about it thanks to the likes of the BLF.

Either way you are right and more education is needed.

Good luck with your endeavour and I hope in some small way I can contribute at a later date.

[Candyred]

I’ve done this already .. I’d love to share with you .. send me your email address private mail xx

[wheezyof]

There's quite a lot about being a carer, tips from other carers and masses about managing/living with lung disease on the British Lung Foundation site.

[christina1947]

I think more can be done to educate young people about damaging effects of smoking I had never heard of copd till I was ill I honestly thought because I was a very light smoker I would be fine because only heavy smokers got lung cancer .The doctor told me at the hospital it’s the accumulated amount you have the same lungs that took that first smoke 55 years ago so on surprise you have lung problems . I notice teenagers vaping even school kids surly they are not substituting cigs they must have started on vaping yes maybe better than cigs but all that smoke it must damage those young lungs A big campaign is due take care all xxx