Just got a letter from hospital to my dr

[Thomsk]

Kind of understand it o

Edited - image removed as it included personal details

[Hidden]

Can’t read it. Blurry.

[Thomsk]

That should be more clear

[Thomsk]

Is that any better

[Thomsk]

Apeter is that better sir

[sassy59]

Hi Thomsk, I managed to read the letter and understand the worsening of your emphysema but not much else.

I do wish you well with whatever the medical profession have planned for you. Take care xxxx

[Thomsk]

Thank you ive tried 6 times to make it clearer but failed😂😂

[Katinka46]

Hmmm..... so.... there was some kind of crisis in 2009, (pneumonia?) and you had a CTPA which showed you had some kind of pneumonia and pulmonary emboli? And they resolved? But you have Emphysema in your upper lobe? You also have an interstitial lung disease, which is usually fibrotic, hence the doubt around the disquamative interstitial pneumonia diagnosis because DIP does not usually develop into fibrosis. So they are querying a different diagnosis. And there are complications because you have a couple of nasty autoimmune disease(s) that end in -algia, which haven’t been properly assessed because they haven’t done the blood test. But you don’t have hepatitis or HIV. Heavens be praised!

Phew.... that was exhausting and I am not even the patient. Just don’t let me loose on your CT scan. That would be serious brain overload.

One knackered Kate and a totally bewildered Zebra 👵🏻🦓

P.S. I think you should join the Zebra (rare disease) club with all those things in your lungs that none of us have heard of.

[Corin1950 in reply to Katinka46]

Hi Kate

I am able to read the letter reasonably clearly on my iPad.

The -algias are "arthralgias" and " myalgias" and it says in the letter that he has developed these since his last MDT review and that he will be seen by their Rheumatology colleagues on Wednesday.

That's all that's visible but the letter doesn't end there.

Hope you're ok

Corin

[sassy59 in reply to Katinka46]

Excellent reply Kate. Hope you and zebra got some rest! Xx 😘

[Thomsk]

Feels like All they seem to be doing is mis diagnosing me then signing off me hoping id just disappear

[Thomsk]

Ooooh so your one person that does know wat ya on about ❤️❤️just seen ya profile 😊

[Katinka46]

Well, to be fair, whatever’s going on inside your rib cage it’s helluva complicated. And that letter diesn’t Sound as if they’ve given up on you. Quite...