I have had COPD since 2007 and was classed as borderline severe then. I dont have oxygen and I'm still here. I get short of breath but manage my condition reasonably well . I had 2 hospital stays in 2016 but have managed to stay out since then.
High Emily yes you can slow the progression by exercise and healthy living. Exercise makes your lungs work, but please don't over do it or you will be defeating the object. And no to my knowledge not everyone needs oxygen do please don't worry. I think you have a positive attitude and that's good. Hope this has helped you, have a lovely day and take care of yourself 😊 Bernadette xx
Thank you how was you first class I intent to do what I need to do my family need me my sister can't look after dad by herself and putting him in a home is not at option for us ...I feel i have found a new family her
Glad you enjoyed it ...I have never excercised really don't eat health donr drink enough fluids ....this disease will in a way maje me healthier.....is that a stupid comment to make?
Hi Emily. No of course that's not a stupid comment to make! Having a chronic illness like this does make you think about your health and looking after yourself so that is the silver lining in the cloud. You might find that with exercising and eating more healthily you feel better than you felt for a long time.
I must admit though that some of it is down to luck as I don't lead a healthy lifestyle but my lung function is still mild and has been for 10 years now. I also only gave up smoking 17 months ago. x
There is nothing wrong with starting off at 5 minutes, especially if you have not been doing any exercise previously. Do that every day or every other day for a week or so and then add a minute or two or more if you feel up to it. You can gradually build up the time you can spend on the treadmill. Of course if you start PR soon they will guide you through it and then you can maintain it when your PR course is done.
Yes it can be slowed down you may never go past moderate and your general health can be improved with exercise and healthy diet. Not everyone who has copd uses oxagen no mater how bad they get its not a suitable treatment for everyone.
It may be helpfull for you to look for a breath easy group near you. They can offer alot of good posative support and sencible advice. The blf helpline may be able to give you info on any near you
I live outside of London corriena and was so surprised to find that the nearest group was a good 2 hour trip from where I live. Shame. I think group support is so beneficial.
I have multiple conditions and have a lung function of 46% and I am not on Oxygen. I do get out of breath on exertion but it is knowing your limits and sometimes pushing them. But not to far!
Hi Emily. I am so happy that you have turned that "Anxious Corner" and now with everyone's help & Advise you can help also. I have mentioned to you before that I am on Oxygen, though I am able to go to the Gym & Exercise Classes. 3 times a week, also do Home exercise, but it is hard to get motivated at Home. Well done for having a Full Five minutes on my Favourite, The Tread Mill, I normally do 3 reps at the Gym 5 mins each Rep , plus other Low level machines, all these I do on Oxygen. As I said I am level 4, and that is how I was Diagnosed( 2013) so No early Mild Diagnosis, which would have made my Life Easier, to be able to stay at "Mild". But, I'm Not, So I do all I can to have a Good happy Life and stay positive. carry on with your Motivation Hun, and again Well Done. xxxxx
Thank you and I am going to do my best to slow this thing down so I that is what I want ....and hope I can achieve it ...I am moderate and going to stay at moderate for as long as possible....but I know a little more but not enough about my condition....Will ask lots of questions at first consultant appointment 25th Febuary ......I would not have come this fair without you all and God...I have never used a treadmill before my daughter found if quite funny
You sound more positive this morning Emily61. Not everyone ends up on oxygen and yes with good health management you can slow the progress down and lead a longish reasonable quality life. Maybe even reach 100 but there maybe bad times too you will have to overcome with medical help.x
Hello Emily. This is my first post but I have been reading on here for months. My husband was diagnosed aged 27. He too thought the worst to begin with. However he is now 75! He played tennis until his late 40s, then continued with croquet which was played at the tennis club (and still does on good days in the summer although he can often only manage half an hour). We had two children and now have grandchildren who he enjoys playing with. He wisely took early retirement in his early 50s from a stressful job working shifts. After that his health improved! He has always been active, and I think this is key for both physical and mental well-being. Yes he had to tailor activity to his abilities but he has a full life. His lung function is now 29% but he is not on oxygen and self manages his condition very well. My role is to feed him healthily and make him do enough but not overdo things! He is getting better at recognising when he needs to rest a bit.
My point is that you can, and almost certainly will, live a good life as others have said. Get a good consultant and don’t be afraid to ask lots of questions. Learn the signs of an impending infection and act quickly. As time goes by you will become expert at managing your condition. I wish I had had all this information when we started out!
As you have already discovered you will have wonderful support here. You are already doing much better than you were. Good luck for a great future.
Hello and thank you for reaching out to me....this will along with everyone else inspire me to keep going...people on here have mentioned lung capacity could you explain it to me some have I still don't get it and again thank you
I should have said lung function not capacity! It is the percentage of what would normally be expected for your age, gender and size. Also made a typo on that should have been 39% not 29%, but still severe. Xx
Your fears aren't stupid or specific to you, believe me. Many of us have been there, too. I'm not sure that fears go away; they merely change.
It is true that at "moderate", you can slow down the deterioration of your lungs, by stopping smoking, getting more exercise, eating well -- all the stuff that I suspect you've already read. Also, not everyone needs oxygen; it is also true that oxygen isn't useful for some forms of COPD.
I'm now at Stage 4 (end stage, if you will). My first diagnosis came when I was about 36 -- half a lifetime ago, since I'm now coming up 72 -- and I didn't stop smoking for many years (more fool me!). I am on oxygen all the time now; you don't need to get into this state!!
Be as cheerful as you can; be positive and do the right things by yourself and you will be much better.
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