Recently Diagnosed Chronic Hypersensitive Pneumonitis

[Bevey76]

Hello everyone! Slightly nervous about posting but here goes....

I am trying to come to terms with my diagnosis of CHP since March 2018, on loads of pills and waiting to see if they work. I don't feel like they are my next appointment is January 2019.

I'm reaching out to the BLF community as all my consultations at a local hospital have been rushed and left me hanging with questions being dismissed.

I've been told i am allergic to mold but my house is mold free, I work from home. What practical things can I do to halt the passage of this disease?

Do fellow sufferers think I should ask to be referred to a specialist ILD clinic, I live in London and UCH is the closest but I don't mind travelling at all - any suggestions? Should I go for further allergy testing privately? Should I see a consultant privately? Should I move house? I am willing to try anything!

There is so little information about HP out there I am hoping to connect with others that have been through the process, fingers crossed xx

[Linnie13]

I was diagnosed with it in match like u im on tablets aldo oxygen when mobile, they haven't found what mine is caused by im back at hos in december ,do you have a bad cough ,I do ,and cough constantly x

[Bevey76 in reply to Linnie13]

Sorry to hear about your constant coughing, luckily it’s not one of my symptoms just really bad breathlessness on exertion, hope the meds work for you x

[goat-lady]

Hello glad to make contact with another sufferer! Have no idea what my trigger is- but I have moved home and stopped doing my charity job. Last tests were improved. See consultant tomorrow.

When first diagnosed via An E the talk was about lung transplant - but I have improved since those early awful days. Respond badly to most meds. Will know if the current mix is doing ok tomorrow.

I know what you mean about rushed- but I have found if I go with prepared questions the consultant will happily answer them. The local GP and respiratory nurse always look nervous when I see them! But the respiratory nurse is lovely and v practical- supported my request for Pulmonary Rehabilitation.

Hope this helps- keep researching and asking questions. M

[hsoni30]

Hi Bevey76,

I am suffering from CHP from 2016.

I done some home self investigated medicine from different blogs that Stopped Progression of CHP(Chronic Hypersensitivity Pneumonitis, ILD) without steroids.

and Result is Improved Lung Function test.

Let me know how you are going with you treatment and any question help required.