sick ov problems

[lenney007]

theres no help for us we just got to manage with wwhat doctors gives us so whats the point ov going on anymore

[stone-UK]

Hi

Life is a gift which we should preserve. Yes we may have a incurable medical condition. But it can be controlled, if we accept our limitations and work within those limits. It can still be enjoyable.

I have watched my grandchildren grow up, my granddaughter as recently got engaged these are memories, and I’m sure there will be many more.

I have no desire to throw in the towel. Despite being stage 4, 21%lung function I still go out every day for a drive, use a mobility scooter at shopping centre. Exercise several time a week. Yes it’s a inconvenience and there are days when i may struggle, but as I understand the breathlessness and know it will come under control I accept the odd hiccup.

Have you attended a pulmonary rehabilitation coures, one hour exercise and one hour education, which will give you a better understanding.

Keep posting with any questions there is plenty of understanding members.

[Hidden]

I live Day to day don’t plan out then not disappointed if To I’ll to do out or it don’t work out.

We all have our ways of coping AND mine suits me.

This no doubt is pits and takes some getting use to BUzt am sure if you give it chance you will manage find your way.

[papilon in reply to Hidden]

Never give up. This is a pain for sure. Get your mind around things, look at what you can do. We all look back, but that's gone. Ask your doc for more help, there is loads of help out there and can be accessed by you. We are all here with advice, all in the same position. Never give up.

[Ergendl]

My limitations were upsetting me because my COPD meant I couldn't be the person I always thought myself to be before. So I decided to concentrate on things I could do. Instead of roaming the hills all day I play organ and keyboards, and I work a lot more on my postcard collection and my writing. I couldn't change my condition much, except to get fitter, but I can change my attitude to it.

Keep going one step at a time, until you find you can accept the new you.

[helenlw7 in reply to Ergendl]

I too follow more sedentary hobbies although I do try to go on at least one dog walk with my husband every day. I don’t have COPD but I do have uncontrolled asthma, bronchiecstasis and Rheumatoid arthritis. I also collect postcards.

[Ergendl in reply to helenlw7]

What sort of post cards do you collect? I collect topographical (pictures of places).

[helenlw7]

I collect map postcards. I started when I joined the Girl Guides aged eleven, and have collected them ever since. My dad got the bug and he and my mum always brought me pcs back from their holidays so I didn’t feel I could give up. He died three years ago and I feel I still need to collect them,

[Dedalus]

As Stone suggests, if you haven't done a pulmonary rehab course do ask your GP to refer you. Some anti-depressant medication may help (I only needed to take it for 2 months and it really helped me). Also, explain to your GP what you're feeling and ask if (for example) a change of inhaler may help your breathing. Check out breathe easy groups in your area to meet others with the same condition. Just don't give up. There's still so much we can do to lead a happy, albeit somewhat limited, life - always worth it xx

[lKeith]

lenney007

Hi, don't beat yourself so much, you have a disease that you must try to work around and live with. Most of us on the forum have problems but we try to carry on as best we can. Accepting is probably the most difficult thing you have to do, you see what you used to do and wish you could still do it, it's all very frustrating.

Try to pick yourself up and stop beating yourself up.

IKeith

[Kristicats]

Hi Lenney sorry to hear how much this is getting you down. It’s hard I know, you think about it every day. It’s hard to not let it take over your life. I think we have to face it.... life IS different now and we have to live a different life, accept it or we will deteriorate faster? But if we adapt our lives and get the people around us to realise we can’t or won’t be doing as much/ the same as them then we can alter things to suit us and perhaps improve the situation we are in? We have to find pleasure in other things that are not SO demanding and support from where we can (here?) you are not alone in this as you will know from this site. We can all be chirpy when our lungs are at best but also down in the dust when the crap starts up again. The trick is to realise eventually things start improving again and keep as active as we can to stop things getting worse.From what I hear pulmonary rehab is very useful and supportive ( my Gp says I’m not bad enough!) but I’m moderate. All gps are different don’t hesitate to ask for referral to a respiratory physician if you feel you are not progressing or deteriorating perhaps your meds could be assessed. Hope you are feeling a little more optimistic soon and able to enjoy the summer months to come.💐

[Sjf129903]

The point is being a surviver today living for a better tomorrow

[Florenc3]

Hi Lenney, I have to admit I have recently been diagnosed with copd and at first I was depressed but then I thought - what the heck, if they hadn’t diagnosed me I would be none the wiser and would just accept life as it was. So I carry on like it doesn’t exist and adapt when I need to and if I need to.

As some one pointed out to me on here, it’s only what you make it and so is life.

Perhaps you need a chat with your gp or a bit of back up from your family.

At least with a diagnosis you can adapt if you need to, I tend to think of what I would miss if I were no longer around, and I’ve got to say I find loads, so I keep going.

Please keep in touch, we are here for you.