Stem cell repair news from Iowa unive... - Lung Conditions C...
Stem cell repair news from Iowa university / lung disease
I think this will happen and considerably quicker than the sceptics of this therapy think. What I dont think will happen is this treatment being available on the NHS In the vast numbers that will want to try it. If the NHS goes for it at all, they will set such a criteria I believe that will leave most people exempt from the opportunity. At this moment in time they are reluctant to give the Avastin drug to breast cancer sufferers because of the cost being prohibitive and they know this drug to be a real asset in the cure of breast cancer. We could argue that the cost of inhalers, drugs etc to give relief of lung disease symptoms to just one person over a number of years would surely outweigh the cost of this treatment, but there is a lot of money to be made out of drugs so that will go on ad infinitum......
No, if people want this treatment in the future I believe a lot of folk are going to have to dig deep in their pockets so I won't be getting too excited at the prospect. However for those who could finance it I would be the first to say go for it! This would be such a breakthrough in revolutionary treatment for a disease that has been sadly ignored for too many years using the same old treatments
It’s very encouraging , I’m following couple of studies / studies that are working on stem cell for lung diseases. One of them already started to show good results on human clinical trials.
where can we see results of the clinical trial?
Please share links! Very interested.
Hi Annie. I am afraid I share your view. I am looking for countries in Europe that offer stem cell treatment but cant find one. I know they do it in the USA.
There are a lot of people who boo-hoo this therapy or even the belief of it but I truly believe that where there is life there is hope, as my father would always quote.
On a similar note, I sponsored a young woman living locally to go to Mexico for stem cell therapy for MS last year. She got there, had the treatment and is doing really well and able to enjoy looking after her children. The therapy did not promise to recover what she had lost through the disease but the hope was to halt the progression of it and so far it seems to have achieved that. So as far as I am concerned bring it on!!!
Hi Annie.That was extremely kind of you. I agree we need hope to continue. Since being diagnosed with Bronchiectasis I go through long periods of depression (big black hole). I constantly research any news to offer us hope. I feel much better when I find such an article.
I love hearing from people like you who have some hope that help may be around the corner.
I live in the UK and know stem cell therapy is available in the Lung institute in the USA. I think I could find the money to go there the only problem is the further treatments in 3 and 6 months. The cost of continually flying back 3 time does put me off a little.
I am still searching for such a treatment in Europe.
Hope your friend continues to do well. Keep us posted. Sue.
Very interesting thanks.
Very, very interesting. I had a stem cell treatment over 2 yrs ago in Nashville, TN. I have noticed an improvement in my lung health just this past year (I have bronchiectasis and am a 69 yr old female).
Interesting in the fact that my oldest daughter and her husband graduated with nursing degrees from U of I. He went on to get a masters in health care. We now live about 2 hrs from Iowa City, so maybe in the future, if I felt I needed another treatment, U of I would be an option.
Hi Beth I too have bronchiectasis severe eosinophils copd , I wretch up on a daily basis for about four or five hours mucus white thick sometimes clear terrible stuff did the stem cell treatment help with yourvmucus, no one seems to be able to do anything about mine nature of the beast etc it’s just not right, glad it’s helping you thanks carol x
I was told that I should feel an improvement 3-6 months after the treatment. I did not. But, about a year after the treatment I noticed that I did not have the infections and mucus overproduction like in the past. My shortness of breath was less and my mucus production is now less, I'm able to clear my lungs easily. Within the past year, I've had several bouts with a cold and congestion, I was able to get over it with over the counter meds (before, I would have to call the doctor for antibiotics and even then I would sometimes need a bronchoscopy).
Did your lung function test improve after the stem cell treatment ?
After about a year, my lung function started to improve. My specialist says that I'm now within the normal range for my age, weight and gender.
Hi Beth, I'm so happy to hear that you are feeling better. I'm 54 and have severe Emphysema. I live in CA and was considering stem cell treatment. I'm just curious, if you don't mind sharing, you said your lung function has improved. Can you tell me what your numbers were before treatment and what they are now? Thanks
The number that he had me look at is the FEV1. In November 2016 it was 1.39, in April 2018 it was 1.97. The normal range for my age, weight and gender is (1.5-3.0).
If I was younger, I would think that the range would be higher.
The Lung Institute offers free webinars explaining the procedure.
Beth
That’s a great improvement to FEV1, very interesting, maybe I’ll get in touch with them.
Thank you
Hi Beth, after two years of your treatment, would you say that the treatment worked for you based on PFT numbers (Can you share them before and after if you don’t mind) and in terms of symptoms
Hi Again, Thanks so much for your reply. I really, really appreciate it. I'm used to FEV1 referred to as a % number, so, I'm not quite sure how to infer your numbers. At 1.39, it seems like you were in "Stage 1/Mild" stage. Is that correct? I'm wondering if maybe the response to Stem Cell might be better if done at the early stages. Still, you made a big jump and that is just awesome. What a good feeling that must be. I've checked out the Lung Institutes info, online. There's just so much dialog about its questionable value. It's great to talk to someone who has done it, and is two years out. Thanks again.
There has been some questions about the results and if it's a waste of money. This is all research, that's why insurance won't pay for it. The clinical trials are research.
Even if I did not feel any better than I did before, I felt, that I was part of the research, good results or none at all.
That's how the medical field find new cures. I think that 40-50 yrs ago, having cancer was a death sentence, now it's not.
have heard of promising results with mice before but not yet on humans - we live in hope ......
Please share links for the human trials, if you have them..thanks! Lots of work on mice but not men/women as yet...it will happen just when and where your personal journey is at when it unfolds. Clinical human trials can take 17 yrs! good to remember this.
Hi , the company sponsoring the research is Regend , it’s chinese company and the research also sponsored by couple of Chinese universities.
Their website is not the best for non Chinese speaking people , you can browse the English version and also read their research article on journal I think it’s called Protein and cell
This link is for their first clinical trial results on human , if ou scroll down the page you will see the lung function measurement before and after.
Hi Flo,
This is the link for the clinical trial from clinicaltrials.gov where u can find many other clinical trials on copd/stem cells
But in this link you can also see that the study started in may 2017 , their estimated primary report is expected Feb 2019 while the study completion is estimated August 2019
You can also find on the same link the contact for the university , company and the doctors who conducted the trials and supervised it
I’m so tempted to contact them !
I’ve just added a screenshot from Regend.cn for lung function before and after the transplantation if you are interested to check it out
I just started feeling poorly from COPD in late 2016, so I knew little about it. Since then I've read a lot, and I'm astounded that the medical/science communities have come up with almost nothing to combat this most dreadful disease. Inhalers and 02. That's about it. Meanwhile, advances in heart care and cancer care have come in leaps and bounds. My COPD is "moderate," or so I'm told, and I'm almost 66 years old. I don't think I will live long enough to benefit from truly effective and widely available stem cell therapy. But wouldn't it be nice. I don't doubt that every COPD patient in the world would gladly give up every penny they had, the roofs over their heads and the food in their pantries for an actual cure.
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