Well I Wrote OR Written To My MP ...... - Lung Conditions C...

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Well I Wrote OR Written To My MP ..... And I Expect Action

20 Replies

Well here is WHAT i written to my MP about.

Dear Mr / Mrs MP

Am writing today following publication, peer review of national lung cancer mesothelioma audit.

Paper was 2016 peer review publication and done by royal college of physicians as part of National Lung Cancer audit.

What interested me in paper was those hard to treat patients ie those suffering Alzheimer’s Dementia who have a asbestos related cancer mesothelioma.

Am personally interested as my own farther as Alzheimer’s Dementia and is suffering from a asbestos related cancer MAINLY mesothelioma.

In 2016 peer review into lung cancer mesothelioma THEY talk of how such patients given the multiple diseases are hard to treat and some are not recognised and go unrecognised.

Needless to say I have tried looking for resources for those suffering from asbestos related diseases who also have Alzheimer’s Dementia and there is none no resources with NICE or NHS Digital.

Something I have come to know to well guess that’s why am writing as they can’t keep going unrecognised being discriminated against when it comes to asbestos related diseases.

Also excluding those proportion of patients like my dad who are not recognised like peer review suggest I would of thought is discriminatory and a fundamental breach of there human rights.

If you could take issue up with elected officials health minster it would be much appreciated as no one in society should go unrecognized.

Yours sincerely

ME

20 Replies
sassy59 profile image
sassy59

Well done JAS and I hope you get the courtesy of a reply. Wishing you well in all you do. Take care xxxx

in reply to sassy59

Hi Sassy don’t think am going to let it go ... sounded out he’s aid today NOT impressed really

Hope they hear what you are saying and your dad gets his day or yourself on his behalf JAS and I applaud you for fighting so hard to get all the info you have so far gathered ... like you said some can't fight and may not have anyone to help them

in reply to

Hi Kemety Cheers it’s all part of this grading system into a hole ALSO myth that’s going round about working class not suffering from mesothelioma.

Quite untrue it’s only professional diease as I have demonstrated.

Travelmate profile image
Travelmate

Well said Jeff , put your case well. Really should get at least a reply from MP ( or some action if I am being an optimist ) Like sassy59 I too wish you well in what you are doing. Terrier spirit there / you keep digging ! Best wishes , Diane

in reply to Travelmate

Hi travelmate I think if my spelling grammar was better think I could of been danergous lol.

Guess MP who ever will have to put up with my spelling etc well until i nock on right door and someone listening.

SquirrelsHolt profile image
SquirrelsHolt

JAS that's the way to do it !! Good for you to keep on until you are given a valid answer. Many would've perhaps given up before now,as you are proof just how hard you have to keep fighting.

Waiting to hear about the reply you receive.....hopefully you'll continue to keep us informed?

Best wishes to Dad also.

in reply to SquirrelsHolt

Hi Squirrelsholt i dont think is valid answer reallly but usally just ignor you.

Am not botherd if the do JUST have to raise issue in europe if the do WELL befoure brexit

Is a disgrace BUT whats bad is others bought into myth of asbestos meso only being professional disease.

SquirrelsHolt profile image
SquirrelsHolt in reply to

Sorry JAS if I've perhaps not expressed myself but I am 101% behind you when it comes to getting answers in the medical field. If I have upset you I totally apologise...it was never my intention to offend you. Far from it, I'm in you and Dad's corner.

in reply to SquirrelsHolt

Hi Squirrelsholt thanks for surport NOR you not upset me.

juney_99_antique profile image
juney_99_antique

Well done, AJS! Everyone needs someone in their corner and your Dad has a fighter in his! He is lucky to have you as too many people these days just accept whatever is thrown at them! You have my 100% support! Best wishes, Juney

in reply to juney_99_antique

Hi juney 99 defo age about people warring whatever’s threw at them.

katieoxo60 profile image
katieoxo60

Was reading an article in a magazine on the same topic Jeff, it is very much in the news at present . So good luck with your MP on this subject. Letters souds good to me.

in reply to katieoxo60

Hi Katie Glad is in news DEFO are neglected AND am sure things set to get worse with austerity.

Would you believe district nurses hospital had no compression badges LIKE we are talking about hospital.

Nothing is ever easy when I’ll ya self ANYWAY hope you is all ok and you still avoiding steps ladders counters DONT think you have much luck with a 4 mentioned :)

katieoxo60 profile image
katieoxo60 in reply to

Happy Easter Jeff, yes it is making the news but might not change a thing. Still getting back pain from fall I had last year. and need ladders to change a light bulb :) fortunately they are long life ones so don't need changing very often. Enjoy your day both

well done jeff hope you find some answers.

in reply to

Hi am sure I will ... I also wrote to Information Commission after all Information they know hold is discriminatory and breach of the human rights.

Well I have understood all ur posts JAS So u keep going and well done ... Your grammar isn't needed ur far too in the fight to let a few words bother you .. ur dad is very lucky xxx

in reply to

Hi Kemety Cheers n thanks

No worries m8 ...

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